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. 2018 Dec;19(12):1047-1053.
doi: 10.1016/j.jamda.2018.07.005. Epub 2018 Aug 23.

Advancing Research on Care Needs and Supportive Approaches for Persons With Dementia: Recommendations and Rationale

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Advancing Research on Care Needs and Supportive Approaches for Persons With Dementia: Recommendations and Rationale

Ann Kolanowski et al. J Am Med Dir Assoc. 2018 Dec.

Abstract

The first National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers was held on October 16-17, 2017, at the National Institutes of Health. In this paper, participants from the Summit Session on Research on Care Needs and Supportive Approaches for Persons with Dementia summarize the state of the science, identify gaps in knowledge, and offer recommendations to improve science and practice in long-term care. Recommendations cover 4 areas focused on persons living with dementia: (1) symptoms (behavioral and psychological symptoms of dementia, function, cognition, and sleep); (2) dementia care settings (physical and social environments, home, and residential care); (3) living with dementia (living well with dementia, living alone with dementia, and living with dementia and intellectual and developmental disabilities); and (4) technology as a cross-cutting theme. The participants identify 10 of the most pressing research issues based on the findings from their collective papers. Final Summit recommendations included those presented by session participants and will be used to advise federal agencies and other organizations that fund research.

Keywords: National Dementia Care Summit; dementia; research recommendations.

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References

    1. Naylor MD, Karlawish JH, Arnold SE, et al. Advancing Alzheimer’s disease diagnosis, treatment, and care: Recommendations from the Ware Invitational summit. Alzheimers Dement 2012;8:445–452. - PMC - PubMed
    1. Patient-centered Outcomes Research Institute. Dementia Methods Pre-Summit Summary and Recommendations Available at: https://aspe.hhs.gov/system/files/pdf/257891/DementiaMethods.pdf; 2017. Accessed October 10, 2017.
    1. Maust DT, Kim HM, Seyfried LS, et al. Antipsychotics, other psychotropics, and the risk of death in patients with dementia: Number needed to harm. JAMA Psychiatry 2015;72:438–445. - PMC - PubMed
    1. Kales HC, Valenstein M, Kim HM, et al. Mortality risk in patients with dementia treated with antipsychotics versus other psychiatric medications. Am J Psychiatry 2007;164:1568–576. quiz 1623. - PubMed
    1. Kales HC, Kim HM, Zivin K, et al. Risk of mortality among individual antipsychotics in patients with dementia. Am J Psychiatry 2012;169:71–79. - PMC - PubMed

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