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Review
. 2018 Jul 2;9(8):239-249.
doi: 10.1177/2040620718784830. eCollection 2018 Aug.

The role of patient and healthcare professionals in the era of new hemophilia treatments in developed and developing countries

Fadi Nossair  1 , Courtney D Thornburg  2
Affiliations
Review

The role of patient and healthcare professionals in the era of new hemophilia treatments in developed and developing countries

Fadi Nossair et al. Ther Adv Hematol. .

Abstract

Medical decisions in hemophilia care are primarily related to the type of factor replacement and treatment regimen. With the growing number of treatment options for patients with hemophilia, decision making is more complex and requires careful consideration of benefits, risks, and patient goals. Shared decision making and decision-aid tools facilitate patient and healthcare provider communication. In this review, the overall role of shared decision making in medicine is outlined, with special emphasis on models for practical implementation. Examples of shared decision making in hemophilia are outlined, and application to new therapeutics is discussed through a case-based approach.

Keywords: clotting factor; extended half-life; gene therapy; hemophilia; novel therapies; shared decision making.

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Conflict of interest statement

Conflict of interest statement: The authors declare that there is no conflict of interest.

Figures

Figure 1.
Figure 1.
Three-talk model of shared decision making.
Figure 2.
Figure 2.
The structure of deliberation dialogues.
Figure 3.
Figure 3.
Standardized approach to individualized treatment plan.
See this image and copyright information in PMC

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