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. 2018 Sep 6;28(Suppl 2):295-302.
doi: 10.18865/ed.28.S2.295. eCollection 2018.

The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

Armen C Arevian  1 , Benjamin Springgate  2 , Felica Jones  3 , Sarah L Starks  1 , Bowen Chung  4 , Ashley Wennerstrom  5 , Loretta Jones  6 , Sheryl H Kataoka  1 , Krystal Griffith  1 , Olivia K Sugarman  2 , Pluscedia Williams  6 , Catherine Haywood  7 , Angela Kirkland  5 , Diana Meyers  8 , Ryan Pasternak  2 , Rubinee Simmasalam  2 , Lingqi Tang  1 , Enrico G Castillo  9 , Anish Mahajan  10 , Max Stevens  11 , Kenneth B Wells  1
Affiliations

The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

Armen C Arevian et al. Ethn Dis. .

Abstract

Objective: We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans.

Setting: A community-academic partnership across Los Angeles County and New Orleans.

Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN.

Findings: Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings.

Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

Keywords: Behavioral Health; Community Engagement; PCORnet; Patient-Powered Research Network; Research Network.

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Conflict of interest statement

Competing Interests: AA developed the Chorus platform used in this study for screening and is the founder of Insight Health Systems, Inc. (a technology company that licenses Chorus) and founder of Arevian Technologies, Inc. and the non-profit Open Science Initiative.

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