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. 2018 Summer;70(3):289-295.
doi: 10.3138/ptc.2017-01.ep.

"A Learned Soul to Guide Me": The Voices of Those Living with Kidney Disease Inform Physical Activity Programming

Trisha L Parsons  1 , Clara Bohm  2 , Katherine Poser  1
Affiliations

"A Learned Soul to Guide Me": The Voices of Those Living with Kidney Disease Inform Physical Activity Programming

Trisha L Parsons et al. Physiother Can. 2018 Summer.

Abstract
in English, French

Purpose: The purpose of this study was to (a) confirm the barriers to and facilitators of physical activity (PA) among persons living with chronic kidney disease (CKD) in Ontario and (b) inform the design of a Kidney Foundation of Canada Active Living for Life programme for persons living with CKD. Method: Adults living with CKD in Ontario were invited to participate in a cross-sectional survey investigating opinions about and needs for PA programming. The 32-item survey contained four sections: programme delivery preferences, current PA behaviour, determinants of PA, and demographics. Data were summarized using descriptive statistics and thematic coding. Results: A total of 63 respondents participated. They had a mean age of 56 (SD 16) years, were 50% female, and were 54% Caucasian; 66% had some post-secondary education. The most commonly reported total weekly PA was 90 minutes (range 0-1,050 minutes). Most respondents (84%) did not regularly perform strength training, and 73% reported having an interest in participating in a PA programme. Conclusion: Individuals living with CKD require resources to support and maintain a physically active lifestyle. We identified a diversity of needs, and they require a flexible and individualized inter-professional strategy that is responsive to the episodic changes in health status common in this population.

Objectif : la présente étude visait à a) confirmer les obstacles et les incitatifs à l'activité physique (AP) chez les personnes atteintes d'une néphropathie chronique (NPC) en Ontario et b) étayer la conception du programme Une vie active pour la vie de la Fondation canadienne du rein pour les personnes atteintes d'une NPC. Méthodologie : des adultes de l'Ontario atteints d'une NPC ont été invités à participer à un sondage transversal sur leurs avis et leurs besoins liés aux programmes d'AP. Le sondage de 32 questions était divisé en quatre parties : préférences quant à la prestation du programme, comportements actuels en matière d'AP, déterminants de l'AP et démographie. Les chercheurs ont résumé les données à l'aide de statistiques descriptives et de codes thématiques. Résultats : au total, 63 répondants ont participé. Ils avaient un âge moyen de 56 ans (ÉT de 16 ans), 50 % étaient des femmes, 54 % étaient blancs et 66 % avaient une certaine éducation postsecondaire. L'AP physique hebdomadaire totale la plus déclarée était de 90 minutes (plage de 0 à 1 050 minutes). La plupart des répondants (84 %) ne faisaient pas d'entraînement musculaire régulier, et 73 % se sont dit intéressés à participer à un programme d'AP. Conclusion : les personnes atteintes d'une NPC ont besoin de ressources pour maintenir un mode de vie actif. Les chercheurs ont repéré une diversité de besoins et la nécessité d'une stratégie interprofessionnelle personnalisée qui tient compte des changements épisodiques de l'état de santé, courants dans cette population.

Keywords: community surveys; exercise; kidney diseases.

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Figures

Figure 1
Figure 1
Key themes identified by the participants in relation to 20 minutes of moderate-intensity physical activity: perceived benefits, drawbacks, facilitators, and barriers. PA=physical activity.
See this image and copyright information in PMC

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