If patients are the true north, patient-centeredness should guide research
- PMID: 30498257
- DOI: 10.1038/s41584-018-0129-y
If patients are the true north, patient-centeredness should guide research
Comment on
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Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol.Pediatr Rheumatol Online J. 2018 Sep 15;16(1):57. doi: 10.1186/s12969-018-0276-3. Pediatr Rheumatol Online J. 2018. PMID: 30219072 Free PMC article. Review.
References
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- Schoemaker, C. G. et al. Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol. Pediatr. Rheumatol. Online J. 16, 57 (2018). - DOI
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- Partridge, N. & Scadding, J. The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials. Lancet 364, 1923–1924 (2004). - DOI
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- Domecq, J. P. et al. Patient engagement in research: a systematic review. BMC Health Serv. Res. 14, 89 (2014). - DOI
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- National Institute for Health Research. INVOLVE | INVOLVE Supporting public involvement in NHS, public health and social care research. INVOLVE http://www.invo.org.uk (2018).
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- US Department fo Health and Human Services. Principles of community engagement, second edition. ATSDR https://www.atsdr.cdc.gov/communityengagement/pdf/PCE_Report_508_FINAL.pdf (2018).
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