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. 2019 Apr 1;44(3):349-362.
doi: 10.1093/jpepsy/jsy097.

A Systematic Review of Behavioral Intervention Technologies for Youth With Chronic Health Conditions and Physical and Intellectual Disabilities: Implications for Adolescents and Young Adults With Spina Bifida

Colleen Stiles-Shields  1 , Autumn N Crowe  1 , Colleen F Bechtel Driscoll  1 , Diana M Ohanian  1 , Alexa Stern  1 , Elicia Wartman  1 , Adrien M Winning  1 , Q Eileen Wafford  2 , Emily G Lattie  2 , Grayson N Holmbeck  1
Affiliations

A Systematic Review of Behavioral Intervention Technologies for Youth With Chronic Health Conditions and Physical and Intellectual Disabilities: Implications for Adolescents and Young Adults With Spina Bifida

Colleen Stiles-Shields et al. J Pediatr Psychol. .

Abstract

Objective: Behavioral intervention technologies (BITs) stand as a promising delivery mechanism that overcomes multiple condition-specific and access barriers for self-management interventions for adolescents and young adults with spina bifida (AYA-SB). The purpose of the current review was to synthesize the behavioral and self-management intervention literature in conditions that have overlapping symptoms with youth with SB and to develop a model of likely user needs for AYA-SB that promotes self-management.

Method: The search strategy was conducted by a medical research librarian in the following databases: MEDLINE (Ovid), EMBASE (Elsevier), PsycINFO (EbscoHost), the Cochrane Library (Wiley), and Web of Science (Thomson Reuters) databases. The review was based on a systematic narrative synthesis framework and adhered to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines (registration number CRD42018092342).

Results: In total, 18 articles were included in the current BIT review. The majority of included studies (1) targeted the management of chronic health conditions, (2) were informed by evidence-based approaches, (3) relied on content delivery, (4) were Web-based, (5) used linear or user-driven workflows, (6) included professional human support, and (7) included a control condition.

Conclusions: Many of the evaluated BITs resulted in acceptable usage and maintained or improved targeted symptoms. A user needs model for AYA-SB is proposed with the intention that future research will promote further refinement and ultimate deployment of a BIT for AYA-SB to promote self-management.

Keywords: AYA; behavioral intervention technologies; chronic health; intellectual disability; physical disability; self-management; spina bifida.

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Figures

Figure 1.
Figure 1.
Overlap of spina bifida with chronic health conditions, physical disabilities, and intellectual disabilities. Note. IQ = intelligence quotient.
Figure 2.
Figure 2.
PRISMA flow diagram for study inclusion. Note. Adapted from “Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement,” by Moher et al. (2009).
Figure 3.
Figure 3.
User needs model for adherence in spina bifida informed by synthesized existing literature. Note. SMS = short message service/text message. Adapted from “The behavioral intervention technology model: An integrated conceptual and technological framework for eHealth and mHealth interventions,” by Mohr et al. (2014).
See this image and copyright information in PMC

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