Peer Support Through a Diabetes Social Media Community
- PMID: 30600704
- PMCID: PMC6501537
- DOI: 10.1177/1932296818818828
Peer Support Through a Diabetes Social Media Community
Abstract
Background: Caregivers and individuals living with type 1 diabetes (T1D) who are members of CGM in the Cloud, a Facebook group associated with the Nightscout Project, were interviewed to assess how the online community impacted peer support.
Methods: Semistructured qualitative interviews were conducted with caregivers and patients who are part of CGM in the Cloud Facebook group. Interview transcripts were analyzed to identify various themes related to peer support in the online group.
Results: Members of the CGM in the Cloud Facebook group identified peer support through giving and receiving technical, emotional, and medical support, as well as giving back to the larger community by paying it forward. Peer support also extended beyond the online forum, connecting people in person, whether they were local or across the country.
Conclusions: An online community can provide many avenues for peer support through emotional and technical support, as well as serve as a tool of empowerment. The community as a whole also had a spirit of altruism that bolstered confidence in others as well as those who paid it forward.
Keywords: mobile technology; online community; peer support; social media; type 1 diabetes.
Conflict of interest statement
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References
-
- Dennis C. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003;40:321-332. - PubMed
-
- Tierney S, Deaton C, Webb K, et al. Isolation, motivation and balance: living with type 1 or cystic fibrosis-related diabetes. J Clin Nurs. 2008;17:235-243. - PubMed
-
- Wolf A, Lui N. The numbers of shame and blame: how stigma affects patients and diabetes management. Learning Curve. diaTribe, 2014. http://diatribe.org/issues/67/learning-curve. Accessed August 3, 2018.
-
- Barlow J, Turner A, Swaby L, Gilchrist M, Wright C, Doherty M. An 8-yr follow-up of arthritis self-management programme participants. Rheumatology. 2009;48:128-133. - PubMed
-
- Hoey L, Ieropoli S, White V, Jefford M. Systematic review of peer-support programs for people with cancer. Patient Educ Couns. 2008;70:315-337. - PubMed
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