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Comment
. 2019 May;45(5):351-352.
doi: 10.1136/medethics-2018-105271. Epub 2019 Jan 7.

In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Nilay Hepgul  1 , Katherine E Sleeman  1 , Alice M Firth  1 , Anna Johnston  1 , James T H Teo  2 , William Bernal  2 , Richard J B Dobson  3 , Irene J Higginson  1
Affiliations
Comment

In response to Ballantyne and Schaefer's 'Consent and the ethical duty to participate in health data research'

Nilay Hepgul et al. J Med Ethics. 2019 May.

Abstract

We welcome Ballantyne & Schaefer's discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.

Keywords: confidentiality/privacy; information technology; informed consent; patient perspective; research ethics.

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Conflict of interest statement

Competing interests: None declared.

Comment on

References

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