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Review
. 2019 Jan;25(1):37-43.
doi: 10.1038/s41591-018-0272-7. Epub 2019 Jan 7.

Privacy in the age of medical big data

W Nicholson Price 2nd  1   2   3 , I Glenn Cohen  4   5   6
Affiliations
Review

Privacy in the age of medical big data

W Nicholson Price 2nd et al. Nat Med. 2019 Jan.

Abstract

Big data has become the ubiquitous watch word of medical innovation. The rapid development of machine-learning techniques and artificial intelligence in particular has promised to revolutionize medical practice from the allocation of resources to the diagnosis of complex diseases. But with big data comes big risks and challenges, among them significant questions about patient privacy. Here, we outline the legal and ethical challenges big data brings to patient privacy. We discuss, among other topics, how best to conceive of health privacy; the importance of equity, consent, and patient governance in data collection; discrimination in data uses; and how to handle data breaches. We close by sketching possible ways forward for the regulatory system.

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References

    1. Cohen IG, Amarasingham R, Shah A, Xie B & Lo B The legal and ethical concerns that arise from using complex predictive analytics in health care. Health Aff 33, 1139–1147 (2014). - PubMed
    1. Executive Office of the President. Big data: seizing opportunities, preserving values https://bigdatawg.nist.gov/pdf/big_data_privacy_report_may_1_2014.pdf (2014).
    1. Hoffman S Electronic Health Records and Medical Big Data (Cambridge Univ. Press, New York, 2016).
    1. Institute of Medicine. Committee on Quality of Health Care in America, the National Academies. To Err is Human: Building a Safer Health System (eds. Kohn LT, Corrigan JM, & Donaldson MS, National Academies Press, Washington, D.C., 2000). - PubMed
    1. Centers for Medicare and Medicaid Services. Hospital inpatient quality reporting program https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Inst....