Palliative care in motor neurone disease: where are we now?
- PMID: 30718958
- PMCID: PMC6348498
- DOI: 10.1177/1178224218813914
Palliative care in motor neurone disease: where are we now?
Abstract
Palliative care has a very important role in the care of patients with motor neurone disease and their families. There is increasing emphasis on the multidisciplinary assessment and support of patients within guidelines, supported by research. This includes the telling of the diagnosis, the assessment and management of symptoms, consideration of interventions, such as gastrostomy and ventilatory support, and care at the end of life. The aim of palliative care is to enable patients, and their families, to maintain as good a quality of life as possible and helping to ensure a peaceful death.
Keywords: end of life; gastrostomy; motor neurone disease; non-invasive ventilation; palliative care.
Conflict of interest statement
Declaration of Conflicting Interest: The author declared no potential conflicts of interest with respect to the research, authorship and/or publication of this article.
References
-
- Shaw C, Quinn A, Daniel E. Amyotrophic lateral sclerosis/motor neurone disease. In: Oliver D, Borasio G, Johnston W. (eds) Palliative care in amyotrophic lateral sclerosis: from diagnosis to bereavement. 3rd ed. Oxford: Oxford University Press, 2014: 6.
-
- Bensimon G, Lacomblez L, Meininger V, et al. A controlled trial of riluzole in amyotrophic lateral sclerosis. N Engl J Med 1994; 330: 585–591. - PubMed
-
- Yeo CJJ, Simmons Z. Discussing edaravone with the ALS patient: an ethical framework from a U.S. perspective. Amyotroph Lateral Scler Frontotemporal Degener 2018; 19: 167–172. - PubMed
-
- Oliver DJ, Borasio GD, Caraceni A, et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol 2016; 23: 30–38. - PubMed
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