Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2019 Mar 7:10:161.
doi: 10.3389/fneur.2019.00161. eCollection 2019.

Building of EMR Tools to Support Quality and Research in a Memory Disorders Clinic

Kelly Claire Simon  1 , Chad Yucus  1 , James Castle  1 , Richard Chesis  2 , Rebekah Lai  2 , Laura Hillman  2 , Samuel Tideman  2 , Lisette Garduno  1 , Steven Meyers  1 , Roberta Frigerio  1 , Demetrius M Maraganore  1
Affiliations

Building of EMR Tools to Support Quality and Research in a Memory Disorders Clinic

Kelly Claire Simon et al. Front Neurol. .

Abstract

The electronic medical record (EMR) presents an opportunity to standardize patient data collection based on quality guidelines and conduct practice-based research. We describe the development of a customized EMR "toolkit" that standardizes patient data collection with hundreds of discrete fields that supports Best Practices for treating patients with memory disorders. The toolkit also supports practice-based research. We describe the design and successful implementation of a customized EMR toolkit to support Best Practices in the care of patients with memory disorders. We discuss applications, including quality improvement projects and current research initiatives, using the toolkit. This toolkit is being shared with other departments of Neurology as part of the Neurology Practice-Based Research Network. Data collection is ongoing, including longitudinal follow-up. This toolkit will generate data that will allow for descriptive and hypothesis driven research as well-quality improvement among patients seen in a memory clinic.

Keywords: cohort studies; data collection; electronic health records; memory disorders; neurology; quality improvement; research.

PubMed Disclaimer

Figures

Figure 1
Figure 1
Screenshots of the Memory Disorders SDCS toolkit within the EMR. (A) Functional activities questionnaire, (B) Barthel Index.
Figure 2
Figure 2
Screenshots of the Memory Disorders SDCS toolkit within the EMR. (A) Current symptoms, (B) initial visit impression.
See this image and copyright information in PMC

References

    1. Alzheimer's Disease International World Alzheimer Report 2015: The Global Impact of Dementia. Available online at: https://www.alz.co.uk/research/world-report-2015 (Accessed May 4, 2018).
    1. Alzheimer's Association 2016 Alzheimer's disease facts and figures. Alzheimers Dement. (2016) 12:459–509. 10.1016/j.jalz.2016.03.001 - DOI - PubMed
    1. Petersen RC. Mild cognitive impairment as a diagnostic entity. J Intern Med. (2004) 256:183–94. 10.1111/j.1365-2796.2004.01388.x - DOI - PubMed
    1. Petersen RC, Morris JC. Mild cognitive impairment as a clinical entity and treatment target. Arch Neurol. (2005) 62:1160–3 10.1001/archneur.62.7.1160 - DOI - PubMed
    1. Petersen RC, Roberts RO, Knopman DS, Geda YE, Cha RH, Pankratz VS, et al. . Prevalence of mild cognitive impairment is higher in men. the mayo clinic study of aging. Neurology. (2010) 75:889–97. 10.1212/WNL.0b013e3181f11d85 - DOI - PMC - PubMed

LinkOut - more resources