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. 2018 Oct 4;6(2):276-282.
doi: 10.1002/nop2.208. eCollection 2019 Apr.

Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study

Ewa Kazimiera Andersson  1 , Helén Dellkvist  1   2 , Ulrika Bernow Johansson  1   2 , Lisa Skär  1
Affiliations

Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study

Ewa Kazimiera Andersson et al. Nurs Open. .

Abstract

Aim: The aim of this study was to describe relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care.

Design: An explorative descriptive qualitative design was used.

Methods: The data were collected using semi-structured interviews with a purposeful sample of eight relatives and analyzed using a qualitative content analysis.

Results: Results show that creating and sharing the life story of a close family member could help relatives handle grief and stress. It was perceived as an important, yet difficult, task to ensure that the close family member got good quality care. The creation of a meaningful life story takes time and requires cooperation with family members and other significant people.

Keywords: dementia; experiences; life story; person‐centred care; relative; residential care.

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Conflict of interest statement

No conflict of interests have been declared by the authors.

References

    1. Berr, C. , Wancata, J. , & Ritchie, K. (2005). Prevalence of dementia in the elderly in Europe. European Neuropsychopharmacology, 15(4), 463–471. 10.1016/j.euroneuro.2005.04.003. - DOI - PubMed
    1. Clarke, A. , Hanson, E. J. , & Ross, H. (2003). Seeing the person behind the patient: Enhancing the care of older people using a biographical approach. Journal of Clinical Nursing, 12(5), 697–706. 10.1046/j.1365-2702.2003.00784.x. - DOI - PubMed
    1. Edvardsson, D. (2010). Personcentrerad omvårdnad i teori och praktik (Person‐centred nursing in theory and praxis). Lund, Sweden: Studentlitteratur.
    1. Egan, M. Y. , Munroe, S. , Hubert, C. , Rossiter, T. , Gauther, A. , Eisner, M. , … Rodrigue, C. (2007). Caring for residents with dementia and aggressive behavior. Journal of Gerontological Nursing, 33(2), 24–30. - PubMed
    1. Eley, R. , & Kaiser, P. (2017). Life story work with people with dementia: Ordinary lives, extraordinary people. London, UK: Jessica Kingsley Publishers.

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