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. 2019 Apr;49(4):539-544.
doi: 10.1111/imj.14244.

Health data linkage research in Australia remains challenging

Dharmenaan Palamuthusingam  1   2 , David W Johnson  2   3   4 , Carmel Hawley  2   3 , Elaine Pascoe  5 , Magid Fahim  2   3
Affiliations

Health data linkage research in Australia remains challenging

Dharmenaan Palamuthusingam et al. Intern Med J. 2019 Apr.

Erratum in

  • Corrigendum.
    [No authors listed] [No authors listed] Intern Med J. 2019 Sep;49(9):1195. doi: 10.1111/imj.14434. Intern Med J. 2019. PMID: 31507046 No abstract available.

Abstract

Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are a missed opportunity for research and innovation and engender a negative attitude among researchers when considering data linkage as a research means. Greater leadership from the Population Health Research Network and cooperation from data custodians and Human Research Ethics Committees are necessary to access optimally Australia's enormous data potential.

Keywords: data linkage; healthcare; research.

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Comment in

  • Access to linked data: challenges and progress.
    Flack F, Smith M. Flack F, et al. Intern Med J. 2019 Oct;49(10):1339-1340. doi: 10.1111/imj.14455. Intern Med J. 2019. PMID: 31602767 No abstract available.
  • Author reply.
    Palamuthusingam D, Johnson DW, Hawley CM, Pascoe EM, Fahim M. Palamuthusingam D, et al. Intern Med J. 2019 Oct;49(10):1340-1341. doi: 10.1111/imj.14586. Intern Med J. 2019. PMID: 31602771 No abstract available.

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