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. 2019 Oct 1;57(5):331-335.
doi: 10.4193/Rhin19.012.

Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

B Pugin  1 , L Deneyer  2 , C Bachert  3 , I Alobid  4 , J Bousquet  5 , G De Carlo  6 , W J Fokkens  7 , S Gane  8 , C Hopkins  9 , C Holzmeister  10 , C Langdon  11 , E S Lourijsen  7 , V J Lund  8 , G Marien  2 , M Mavris  12 , J Mullol  4 , C Pereira-Perez  4 , P V Tomazic  10 , O Vanderveken  13 , P W Hellings  14 , S F Seys  1
Affiliations

Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative

B Pugin et al. Rhinology. .

Abstract

Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.

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