Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine
- PMID: 30984759
- PMCID: PMC6449432
- DOI: 10.3389/fmed.2019.00048
Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine
Abstract
The growth in the direct-to-consumer genetic testing industry poses a number of challenges for healthcare practice, among a number of other areas of concern. Several companies providing this service send their customers reports including information variously referred to as genetic ethnicity, genetic heritage, biogeographic ancestry, and genetic ancestry. In this article, we argue that such information should not be used in healthcare consultations or to assess health risks. Far from representing a move toward personalized medicine, use of this information poses risks both to patients as individuals and to racialized ethnic groups because of the way it misrepresents human genetic diversity.
Keywords: ethics; ethnicity; genetic testing; personalized medicine; race.
References
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- Human Genetics Commission Genes Direct: Ensuring the Effective Oversight of Genetic Tests Supplied Directly to the Public. London: Department of Health; (2003).
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- Regalado A. 2017 was the Year Consumer DNA Testing Blew Up. Technology Review (2018). Available online at: https://www.technologyreview.com/s/610233/2017-was-the-year-consumer-dna...
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