Catalyzing Research to Optimize Cancer Survivors' Participation in Work and Life Roles

Robin M Newman¹, Catherine M Alfano², Mary Vining Radomski³, Mackenzi Pergolotti⁴, Timothy J Wolf⁵, Alix G Sleight⁶, Ashley Leak Bryant⁷, Gerald T Voelbel⁸, Janet S de Moor⁹, Ralph Nitkin¹⁰, Elvan Daniels¹¹, Brent Braveman¹², Rachel K Walker¹³, Grant R Williams¹⁴, Kerri M Winters-Stone¹⁵, Andrea L Cheville¹⁶, Scott E Campbell¹⁷, Mary C Lawlor¹⁸, Allison A King¹⁹, Kirsten K Ness²⁰, Piyush Srivastava²¹, Kathleen Doyle Lyons²²

Affiliations

¹ Boston University, MA, USA.
² American Cancer Society Inc., Washington, DC, USA.
³ Courage Kenny Research Center, Minneapolis, MN, USA.
⁴ ReVital Cancer Rehabilitation, Select Medical, Mechanicsburg, PA, USA.
⁵ University of Missouri, Columbia, USA.
⁶ National Cancer Institute, Rockville, MD, USA.
⁷ The University of North Carolina at Chapel Hill, USA.
⁸ New York University, New York City, USA.
⁹ National Cancer Institute, Bethesda, MD, USA.
¹⁰ Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, MD, USA.
¹¹ American Cancer Society Inc., Atlanta, GA, USA.
¹² MD Anderson Cancer Center, Houston, TX, USA.
¹³ University of Massachusetts, Amherst, USA.
¹⁴ The University of Alabama at Birmingham, USA.
¹⁵ Oregon Health & Science University, Portland, USA.
¹⁶ Mayo Clinic, Rochester, MN, USA.
¹⁷ American Occupational Therapy Foundation, Bethesda, MD, USA.
¹⁸ University of Southern California, Los Angeles, USA.
¹⁹ Washington University in St. Louis, MO, USA.
²⁰ St. Jude Children's Research Hospital, Memphis, TN, USA.
²¹ The Permanente Medical Group, Oakland, CA, USA.
²² Dartmouth-Hitchcock Medical Center, Lebanon, NH, USA.

PMID: 31046601
DOI: 10.1177/1539449219844749

Catalyzing Research to Optimize Cancer Survivors' Participation in Work and Life Roles

Robin M Newman et al. OTJR (Thorofare N J). 2019 Oct.

. 2019 Oct;39(4):189-196.

doi: 10.1177/1539449219844749. Epub 2019 May 3.

Authors

Affiliations

¹ Boston University, MA, USA.
² American Cancer Society Inc., Washington, DC, USA.
³ Courage Kenny Research Center, Minneapolis, MN, USA.
⁴ ReVital Cancer Rehabilitation, Select Medical, Mechanicsburg, PA, USA.
⁵ University of Missouri, Columbia, USA.
⁶ National Cancer Institute, Rockville, MD, USA.
⁷ The University of North Carolina at Chapel Hill, USA.
⁸ New York University, New York City, USA.
⁹ National Cancer Institute, Bethesda, MD, USA.
¹⁰ Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, MD, USA.
¹¹ American Cancer Society Inc., Atlanta, GA, USA.
¹² MD Anderson Cancer Center, Houston, TX, USA.
¹³ University of Massachusetts, Amherst, USA.
¹⁴ The University of Alabama at Birmingham, USA.
¹⁵ Oregon Health & Science University, Portland, USA.
¹⁶ Mayo Clinic, Rochester, MN, USA.
¹⁷ American Occupational Therapy Foundation, Bethesda, MD, USA.
¹⁸ University of Southern California, Los Angeles, USA.
¹⁹ Washington University in St. Louis, MO, USA.
²⁰ St. Jude Children's Research Hospital, Memphis, TN, USA.
²¹ The Permanente Medical Group, Oakland, CA, USA.
²² Dartmouth-Hitchcock Medical Center, Lebanon, NH, USA.

PMID: 31046601
DOI: 10.1177/1539449219844749

Abstract

Participation refers to a state of health in which a person is able to fully engage in roles and life situations. Adults living with and beyond cancer often report persistent participation restrictions that affect their productivity and quality of life. The American Occupational Therapy Foundation convened a group of scientists from seven different disciplines in a Planning Grant Collective (PGC) to stimulate research to identify scalable ways to preserve and optimize participation among cancer survivors. Participants identified challenges, prioritized solutions, and generated novel research questions that move beyond symptom and impairment mitigation as outcomes to identify interventions that improve participation in roles and life situations. This article summarizes the PGC discussion and recommendations regarding three challenges: (a) the dynamic and multi-faceted nature of participation, (b) a need to integrate the concept of participation within the culture of oncology, and (c) identification of priority areas in which new lines of research regarding participation would be most impactful.

Keywords: cancer; disability; everyday occupations; functional outcomes; participation.

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Catalyzing Research to Optimize Cancer Survivors' Participation in Work and Life Roles

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Catalyzing Research to Optimize Cancer Survivors' Participation in Work and Life Roles

Authors

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Abstract

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LinkOut - more resources

Full Text Sources

Medical