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Observational Study
. 2019 Jul:32:133-137.
doi: 10.1016/j.msard.2019.05.004. Epub 2019 May 15.

The Argentinean multiple sclerosis registry (RelevarEM): Methodological aspects and directions

Juan Ignacio Rojas  1 , Adriana Carrá  2 , Jorge Correale  3 , Edgardo Cristiano  4 , Nora Fernández Liguori  5 , Ricardo Alonso  6 , Amelia Alvez Pinheiro  7 , María E Balbuena  8 , Andrés G Barboza  9 , Santiago Bestoso  10 , Patricio A Blaya  11 , Marcos Burgos  12 , Lorena M Cabrera  13 , Alejandro Caride  14 , Edgar Carnero Contentti  14 , Leila Cohen  15 , Celeste Curbelo  16 , Norma Deri  17 , Pablo Divi  18 , Marcela Fiol  3 , María E Fracaro  19 , María I Gaitán  3 , Javier Hryb  20 , Miguel Jacobo  18 , Eduardo Knorre  21 , Felisa Leguizamon  21 , Diego Giunta  22 , Marina Alonso Serena  22 , María L Doldan  4 , Guillermo F De Lio  4 , Susana Del V Liwacki  23 , Pablo A Lopez  14 , Geraldine Luetic  24 , Carolina Mainella  25 , Ruben Manzi  26 , Mariano Marrodan  3 , Alejandra D Martinez  27 , Jimena Miguez  4 , Laura Negrotto  3 , Pedro Nofal  28 , Marcela Parada Marcilla  29 , Juan Pablo Pettinicchi  14 , Berenice A Silva  15 , Emanuel Silva  30 , Facundo Silveira  4 , Judith D Steinberg  27 , Dario Tavolini  31 , Santiago Tizio  32 , Verónica Tkachuk  8 , Guido Vazquez  33 , Gabriel Volman  34 , Carlos Vrech  35 , María C Ysrraelit  3 , Gisela Zanga  36 , Orlando Garcea  15 , Liliana Patrucco  4
Affiliations
Observational Study

The Argentinean multiple sclerosis registry (RelevarEM): Methodological aspects and directions

Juan Ignacio Rojas et al. Mult Scler Relat Disord. 2019 Jul.

Abstract

Despite that different registries already exist in various countries in Europe and North America, no ongoing nationwide registry exists in Latin America (LATAM), a region where the disease behaves differently than in other regions. The objective of this document is to describe the methodology behind RelevarEM, the first nationwide MS registry in Argentina and LATAM. METHODS: In this article, we described the creation, implementation and data management of the nationwide MS registry in Argentina. The registry contains information on the structure, ethical aspects, implementation and variables of the registry (Clinical Trials registry number NCT NCT03375177). CONCLUSION: RelevarEM is the first MS nationwide registry in Argentina, as well as in LATAM, with the objective of providing reliable real-world data of MS in the country.

Keywords: Argentina; Epidemiology; Multiple sclerosis; Registry.

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