Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe

Ziad A Massy^{1

2}, Fergus J Caskey³, Patrik Finne^{4

5}, Jerome Harambat⁶, Kitty J Jager⁷, Evi Nagler⁸, Benedicte Stengel², Mehmet Sukru Sever⁹, Raymond Vanholder¹⁰, Peter J Blankestijn¹¹, Annette Bruchfeld¹², Giovambattista Capasso¹³, Danilo Fliser¹⁴, Denis Fouque¹⁵, Dimitrios Goumenos¹⁶, Maria Jose Soler^{17

18}, Ivan Rychlík¹⁹, Goce Spasovski²⁰, Kathryn Stevens²¹, Christoph Wanner²², Carmine Zoccali²³

Affiliations

¹ Division of Nephrology, Ambroise Paré Hospital, APHP, Paris-Ile-de-France-West University (UVSQ), Boulogne-Billancourt, Paris, France.
² INSERM U1018 Team5, Paris-Saclay University, Villejuif, France.
³ Consultant Senior Lecturer, Population Health Sciences University of Bristol, UK.
⁴ Finnish Registry for Kidney Diseases, Helsinki, Finland.
⁵ Abdominal Center Nephrology, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.
⁶ Pediatric Nephrology Unit, Pellegrin-Enfants Hospital, Bordeaux University Hospital, and University of Bordeaux, INSERM, Team LEHA, Bordeaux, France.
⁷ ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam Public Health research institute, Amsterdam, The Netherlands.
⁸ European Renal Best Practice, London, UK.
⁹ Department of Nephrology/Internal Medicine, Istanbul School of Medicine, Istanbul University, Millet Caddesi, Istanbul, Turkey.
¹⁰ Nephrology Section, Department of Internal Medicine, Ghent University Hospital, Corneel Heymanslaan, Ghent, Belgium.
¹¹ Department of Nephrology, University Medical Center, Utrecht, The Netherlands.
¹² Department of Renal Medicine, CLINTEC, Karolinska Institutet at Karolinska University Hospital, Stockholm, Sweden.
¹³ Department of Medical Translational Sciences, University of "Luigi Vanvitelli" Naples and Biogem, Ariano Irpino, Italy.
¹⁴ Department of Internal Medicine IV-Nephrology and Hypertension, Saarland University Medical Centre, Homburg, Germany.
¹⁵ Department of Nephrology, Dialysis, Nutrition, Université de Lyon, CARMEN, Centre Hospitalier Lyon Sud, Pierre Bénite Cedex, France.
¹⁶ Department of Nephrology, University Hospital of Patras, Patras, Greece.
¹⁷ Department of Nephrology, Vall d'Hebron University Hospital, Barcelona, Spain.
¹⁸ Departament of Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain.
¹⁹ 1st Department of Internal Medicine, Third Faculty of Medicine, Charles University, Prague, Czech Republic.
²⁰ Department of Nephrology, Medical Faculty, University of Skopje, Skopje, Former Yugoslav, Republic of Macedonia.
²¹ Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK.
²² Department of Medicine, Division of Nephrology, University Hospital, Wuerzburg, Germany.
²³ CNR-IFC, Ospedali Riuniti, Reggio Calabria, Italy.

PMID: 31197325
PMCID: PMC6736134
DOI: 10.1093/ndt/gfz089

Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe

Ziad A Massy et al. Nephrol Dial Transplant. 2019.

. 2019 Sep 1;34(9):1469-1480.

doi: 10.1093/ndt/gfz089.

Authors

Affiliations

¹ Division of Nephrology, Ambroise Paré Hospital, APHP, Paris-Ile-de-France-West University (UVSQ), Boulogne-Billancourt, Paris, France.
² INSERM U1018 Team5, Paris-Saclay University, Villejuif, France.
³ Consultant Senior Lecturer, Population Health Sciences University of Bristol, UK.
⁴ Finnish Registry for Kidney Diseases, Helsinki, Finland.
⁵ Abdominal Center Nephrology, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.
⁶ Pediatric Nephrology Unit, Pellegrin-Enfants Hospital, Bordeaux University Hospital, and University of Bordeaux, INSERM, Team LEHA, Bordeaux, France.
⁷ ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam Public Health research institute, Amsterdam, The Netherlands.
⁸ European Renal Best Practice, London, UK.
⁹ Department of Nephrology/Internal Medicine, Istanbul School of Medicine, Istanbul University, Millet Caddesi, Istanbul, Turkey.
¹⁰ Nephrology Section, Department of Internal Medicine, Ghent University Hospital, Corneel Heymanslaan, Ghent, Belgium.
¹¹ Department of Nephrology, University Medical Center, Utrecht, The Netherlands.
¹² Department of Renal Medicine, CLINTEC, Karolinska Institutet at Karolinska University Hospital, Stockholm, Sweden.
¹³ Department of Medical Translational Sciences, University of "Luigi Vanvitelli" Naples and Biogem, Ariano Irpino, Italy.
¹⁴ Department of Internal Medicine IV-Nephrology and Hypertension, Saarland University Medical Centre, Homburg, Germany.
¹⁵ Department of Nephrology, Dialysis, Nutrition, Université de Lyon, CARMEN, Centre Hospitalier Lyon Sud, Pierre Bénite Cedex, France.
¹⁶ Department of Nephrology, University Hospital of Patras, Patras, Greece.
¹⁷ Department of Nephrology, Vall d'Hebron University Hospital, Barcelona, Spain.
¹⁸ Departament of Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain.
¹⁹ 1st Department of Internal Medicine, Third Faculty of Medicine, Charles University, Prague, Czech Republic.
²⁰ Department of Nephrology, Medical Faculty, University of Skopje, Skopje, Former Yugoslav, Republic of Macedonia.
²¹ Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK.
²² Department of Medicine, Division of Nephrology, University Hospital, Wuerzburg, Germany.
²³ CNR-IFC, Ospedali Riuniti, Reggio Calabria, Italy.

PMID: 31197325
PMCID: PMC6736134
DOI: 10.1093/ndt/gfz089

Erratum in

Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe.
Massy ZA, Caskey FJ, Finne P, Harambat J, Jager KJ, Nagler E, Stengel B, Sever MS, Vanholder R, Blankestijn PJ, Bruchfeld A, Capasso G, Fliser D, Fouque D, Goumenos D, Soler MJ, Rychlík I, Spasovski G, Stevens K, Wanner C, Zoccali C. Massy ZA, et al. Nephrol Dial Transplant. 2019 Sep 1;34(9):1616. doi: 10.1093/ndt/gfz154. Nephrol Dial Transplant. 2019. PMID: 31361317 Free PMC article. No abstract available.

Abstract

The strengths and the limitations of research activities currently present in Europe are explored in order to outline how to proceed in the near future. Epidemiological and clinical research and public policy in Europe are generally considered to be comprehensive and successful, and the European Renal Association - European Dialysis and Transplant Association (ERA-EDTA) is playing a key role in the field of nephrology research. The Nephrology and Public Policy Committee (NPPC) aims to improve the current situation and translation into public policy by planning eight research topics to be supported in the coming 5 years by ERA-EDTA.

Keywords: acute kidney injury; big data; cohorts; guidelines; registry.

PubMed Disclaimer

Figures

**FIGURE 1**
Roadmap for ongoing nephrology research for screening, diagnosing, preventing and treating CKD. Although valuable registry data and cohort studies exist for defining the current burden of CKD, novel studies are certainly needed for screening, diagnosing, preventing and treating this public health problem. Information that may be gained from future research may be useful for establishing novel predictive biomarkers for screening and diagnosing CKD, and thus be useful for creating/implementing guidelines and finally performing interventions for prevention and treatment of CKD. National societies, kidney foundations, ERA-EDTA and EKHA may collaborate and support all parties involved in managing the problems encountered during the planning and the support of these projects.

See this image and copyright information in PMC

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Sever MŞ, Jager KJ, Vanholder R, Stengel B, Harambat J, Finne P, Tesař V, Barbullushi M, Bumblytė IA, Zakharova E, Spasovski G, Resic H, Wiecek A, Blankestijn PJ, Bruchfeld A, Cozzolino M, Goumenos D, Soler MJ, Rychlík I, Stevens KI, Wanner C, Zoccali C, Massy ZA. Sever MŞ, et al. Clin Kidney J. 2020 Dec 22;14(1):23-35. doi: 10.1093/ckj/sfaa218. eCollection 2021 Jan. Clin Kidney J. 2020. PMID: 33570513 Free PMC article. Review.

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Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe

Affiliations

Nephrology and Public Policy Committee propositions to stimulate research collaboration in adults and children in Europe

Authors

Affiliations

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