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. 2019 Jun 17:12:17.
doi: 10.1186/s40545-019-0175-0. eCollection 2019.

Patient involvement in questionnaire design: tackling response error and burden

Marissa Ayano Mes  1 , Amy Hai Yan Chan  1 , Vari Wileman  1 , Caroline Brigitte Katzer  1 , Melissa Goodbourn  2   3 , Steven Towndrow  4 , Stephanie Jane Caroline Taylor  5 , Rob Horne  1
Affiliations

Patient involvement in questionnaire design: tackling response error and burden

Marissa Ayano Mes et al. J Pharm Policy Pract. .

Abstract

Questionnaires capture patient perspectives succinctly and at relatively low cost, making them a popular data collection tool for health researchers. However, questionnaire data can be affected by response error and response burden. Patient involvement during questionnaire design can help reduce the effect of response error and burden. This paper describes a novel approach for patient involvement during questionnaire design, combining methods from cognitive interviewing (Think Aloud Tasks) with an open-ended follow-up discussion to collate and act on patient feedback, while also taking account of the common challenges in questionnaire design (i.e. response error and burden). The strengths and limitations of this approach are discussed, and recommendations are made for future use.

Keywords: Cognitive Interviewing.; Patient and public involvement (PPI); Questionnaire Design.; Think Aloud Tasks (TATs)..

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Conflict of interest statement

Competing interestsThe authors declare that they have no competing interest.

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