Ethical, legal, and social implications of learning health systems

doi:10.1002/lrh2.10051

. 2018 Jan 3;2(1):e10051.

doi: 10.1002/lrh2.10051. eCollection 2018 Jan.

Ethical, legal, and social implications of learning health systems

Jodyn Platt¹, Kayte Spector-Bagdady^{2

3}, Tevah Platt⁴, Raymond De Vries^{1

3}, Dorene Markel^{1

5}, Raymond Hutchinson^{6

7}, Frank Manion⁷, Georgiann Ziegler⁸, Joshua Rubin¹, Sharon Kardia⁹

Affiliations

¹ Department of Learning Health Sciences University of Michigan Medical School Ann Arbor Michigan.
² Department of Obstetrics and Gynecology University of Michigan Medical School Ann Arbor Michigan.
³ Center for Bioethics and Social Sciences in Medicine University of Michigan Ann Arbor Michigan.
⁴ Life Sciences and Society Program University of Michigan School of Public Health Ann Arbor Michigan.
⁵ Brehm Center, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁶ Pediatric Hematology/Oncology and Dean's Office University of Michigan Medical School Ann Arbor Michigan.
⁷ Comprehensive Cancer Center, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁸ Center for Patient and Family Centered Care, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁹ Department of Epidemiology University of Michigan School of Public Health Ann Arbor Michigan.

PMID: 31245577
PMCID: PMC6508801
DOI: 10.1002/lrh2.10051

Ethical, legal, and social implications of learning health systems

Jodyn Platt et al. Learn Health Syst. 2018.

. 2018 Jan 3;2(1):e10051.

doi: 10.1002/lrh2.10051. eCollection 2018 Jan.

Authors

Affiliations

¹ Department of Learning Health Sciences University of Michigan Medical School Ann Arbor Michigan.
² Department of Obstetrics and Gynecology University of Michigan Medical School Ann Arbor Michigan.
³ Center for Bioethics and Social Sciences in Medicine University of Michigan Ann Arbor Michigan.
⁴ Life Sciences and Society Program University of Michigan School of Public Health Ann Arbor Michigan.
⁵ Brehm Center, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁶ Pediatric Hematology/Oncology and Dean's Office University of Michigan Medical School Ann Arbor Michigan.
⁷ Comprehensive Cancer Center, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁸ Center for Patient and Family Centered Care, Michigan Medicine University of Michigan Ann Arbor Michigan.
⁹ Department of Epidemiology University of Michigan School of Public Health Ann Arbor Michigan.

PMID: 31245577
PMCID: PMC6508801
DOI: 10.1002/lrh2.10051

No abstract available

Keywords: engagement; equity; ethics; learning health systems.

PubMed Disclaimer

Conflict of interest statement

The authors have no competing interests to declare.

Figures

**Figure 1**
Learning health systems are infrastructural innovations

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References

1. Friedman C, Rubin J, Brown J, et al. Toward a science of learning systems: a research agenda for the high‐functioning Learning Health System. J Am Med Inform Assoc. 2015;22(1):43‐50. 10.1136/amiajnl-2014-002977 - DOI - PMC - PubMed
1. Etheredge LM. A rapid‐learning health system. Health Aff. 2007;26(2):w107‐ww18. - PubMed
1. Friedman CP, Wong AK, Blumenthal D. Achieving a nationwide learning health system. Sci Translat Med. 2010;2(57):57cm29‐57cm29. - PubMed
1. Friedman C, Rubin J, Sullivan K. Toward an information infrastructure for Global Health Improvement. Yearbook Med Informat. 2017;26(01):16‐23. - PMC - PubMed
1. HIPAA Privacy Rule . 45 CFR Part 160 and subparts A and E of part 164.

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[1] Friedman C, Rubin J, Brown J, et al. Toward a science of learning systems: a research agenda for the high‐functioning Learning Health System. J Am Med Inform Assoc. 2015;22(1):43‐50. 10.1136/amiajnl-2014-002977 - DOI - PMC - PubMed

[2] Friedman C, Rubin J, Brown J, et al. Toward a science of learning systems: a research agenda for the high‐functioning Learning Health System. J Am Med Inform Assoc. 2015;22(1):43‐50. 10.1136/amiajnl-2014-002977 - DOI - PMC - PubMed

[3] Etheredge LM. A rapid‐learning health system. Health Aff. 2007;26(2):w107‐ww18. - PubMed

[4] Etheredge LM. A rapid‐learning health system. Health Aff. 2007;26(2):w107‐ww18. - PubMed

[5] Friedman CP, Wong AK, Blumenthal D. Achieving a nationwide learning health system. Sci Translat Med. 2010;2(57):57cm29‐57cm29. - PubMed

[6] Friedman CP, Wong AK, Blumenthal D. Achieving a nationwide learning health system. Sci Translat Med. 2010;2(57):57cm29‐57cm29. - PubMed

[7] Friedman C, Rubin J, Sullivan K. Toward an information infrastructure for Global Health Improvement. Yearbook Med Informat. 2017;26(01):16‐23. - PMC - PubMed

[8] Friedman C, Rubin J, Sullivan K. Toward an information infrastructure for Global Health Improvement. Yearbook Med Informat. 2017;26(01):16‐23. - PMC - PubMed

[9] HIPAA Privacy Rule . 45 CFR Part 160 and subparts A and E of part 164.

[10] HIPAA Privacy Rule . 45 CFR Part 160 and subparts A and E of part 164.

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Ethical, legal, and social implications of learning health systems

Affiliations

Ethical, legal, and social implications of learning health systems

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Affiliations

Conflict of interest statement

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