The quality of life and inequalities in health services for epilepsy treatment among patience in the urban cities of Sudan
- PMID: 31303955
- PMCID: PMC6607452
- DOI: 10.11604/pamj.2019.33.10.15440
The quality of life and inequalities in health services for epilepsy treatment among patience in the urban cities of Sudan
Abstract
Epilepsy in Sudan accounts for 1.6 annual mortality rates and 238.7 disability adjusted life years per 100 000. These figures are higher among females; children and young adults. It is associated with notable stigma and social burdens. Patients of epilepsy are subjected to various forms of social discrimination that affect their quality of life. They are isolated, neglected and deprived of their education and employments rights and not able to achieve normal social and family life. Aiming at highlighting social implications of epilepsy among Sudanese patients, this study found that social encumbrances due to epilepsy in Sudan are more prevalent among highly vulnerable groups like women, children and poor populations living in remote areas. Lack of trained medical personnel in neurology and the medical equipment's required for proper diagnosis and treatment of epilepsy in Sudan are key reasons aggravating social and health burden of epilepsy both among patients and their caregivers.
Keywords: Epilepsy; Sudan; inequalities; patients; quality of life.
Conflict of interest statement
The authors declare no competing interests.
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References
-
- World Health Organization . Statistics. Sudan: 2018. Cited 18 Feb 2018.
-
- Newton CR, Garcia HH. Epilepsy in poor regions of the world. The Lancet. 2012;380(9848):1193–201. - PubMed
-
- Riddler SA, Smit E, Cole SR, Li R, Chmiel JS, Dobs A, Palella F, Visscher B, Evans R, Kingsley LA. Impact of HIV infection and HAART on serum lipids in men. Jama. 2003 Jun 11;289(22):2978–82. - PubMed
-
- Mohamed IN, Elseed MA, Hamed AA, Abdel-Rahman ME, El-Sadig SM, Omer IM, et al. Prevalence of epilepsy in 74,949 school children in Khartoum State, Sudan. Paediatrics and international child health. 2017;37(3):188–92. Epub 2017 Feb 6. - PubMed
-
- Hamid O, Taha M, Balla S, Hussien A. Stigma of epilepsy among patients and their relatives attending charity clinic, Omdurman-Sudan. Journal of the neurological sciences. 2013;333(Supplement 1):e61–e2.