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Review

Navigating Towards Self-Care: The Catalan Public Patient Portal

Joan Rodon Modol  1
Margunn Aanestad  1 , Miria Grisot  1 , Ole Hanseth  1 , Polyxeni Vassilakopoulou  1
, editors.
In: Information Infrastructures within European Health Care: Working with the Installed Base [Internet]. Cham (CH): Springer; 2017. Chapter 11.
.
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Review

Navigating Towards Self-Care: The Catalan Public Patient Portal

Joan Rodon Modol.
Free Books & Documents

Excerpt

This chapter presents the genesis and evolution of the public patient portal called Carpeta Personal de Salut (CPS) of Catalonia, Spain from 2008 to 2015. The CPS started as a web-browser viewer of a subset of citizens’ health data stored in the systems of the public health system, and has gradually turned into an information infrastructure as new relations with other systems, services, actors, regulations, practices, and so on, have been established. This chapter suggests how in order to cope with the conditions of indeterminacy and uncertainty characterizing the building of patient-oriented information infrastructures, designs must always be open and connectable so as to be able to respond to new possibilities.

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References

    1. AgreementForHC3. Conveni tipus per implantar la Història Clínica Compartida a Catalunya (HCCC), Department of Health, Catalan Government. 2009.
    1. Carrau E, Labordena MJ, González M. La Historia Clínica Compartida de Cataluña. Soc Esp Inform Salud. 2013;97:8–11.
    1. CatSalutReport. Memòria del CatSalut 2011, Generalitat de Catalunya, Departament de Salut. 2011.
    1. Cerdà-Calafat I, Continente-Gonzalo M, García-López C, Guanyabens-Calvet J. Carpeta personal de salud. Med Clín. 2010;134(1):63–6.
    1. DataProtectionAct. Ley Orgánica 15/1999, de 13 de diciembre, de protección de datos de carácter personal, BOE n° 298 of December 14th 1999, Spanish Government. 1999.

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