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. 2019 Aug;19(8):3-14.
doi: 10.1080/15265161.2019.1619859.

The Rise of Citizen Science in Health and Biomedical Research

Andrea Wiggins  1 , John Wilbanks  2
Affiliations
Free article

The Rise of Citizen Science in Health and Biomedical Research

Andrea Wiggins et al. Am J Bioeth. 2019 Aug.
Free article

Abstract

Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.

Keywords: citizen science; confidentiality and privacy; participatory research; professional–patient relationship; research ethics; social science research.

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