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. 2019 Mar;58(1):3-12.
doi: 10.20471/acc.2019.58.01.01.

ADAPTATION AND VALIDATION OF THE CAMBRIDGE PULMONARY HYPERTENSION OUTCOME REVIEW (CAMPHOR) FOR CROATIA

Ana Hećimović  1 , Alice Heaney  1 , Stephen P McKenna  1 , Latinka Basara  1 , Marko Jakopović  1 , Andrea Vukić Dugac  1 , Gzim Redžepi  1 , Cecilija Rotim  1 , Miroslav Samaržija  1 , Nataša Jokić-Begić  1 , Sanja Popović-Grle  1
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ADAPTATION AND VALIDATION OF THE CAMBRIDGE PULMONARY HYPERTENSION OUTCOME REVIEW (CAMPHOR) FOR CROATIA

Ana Hećimović et al. Acta Clin Croat. 2019 Mar.

Abstract

Pulmonary hypertension (PH) is a chronic disease which severely impairs quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is the first disease-specific tool to assess patient-reported symptoms, functioning and QoL in PH patients. The aim of this study was to adapt and validate the CAMPHOR for use in Croatia. The adaptation process involved three stages: translation (bilingual and lay panel), cognitive debriefing interviews with patients and psychometric validation. For the latter stage, a postal survey was conducted with 50 patients to examine the reliability and validity of the adapted scale. All three scales of the Croatian CAMPHOR demonstrated excellent internal consistency (Symptoms = 0.93; Activity limitations = 0.94; QoL = 0.92) and test-retest reliability correlations (Symptoms = 0.90; Activity limitations = 0.95; QoL = 0.90). Predicted correlations with the SF-36 scales provided evidence for construct validity of the CAMPHOR scales. Evidence for known group validity was shown by the ability of the scales to distinguish between participants based on patient-perceived general health and disease severity. The Croatian version of the CAMPHOR is a valid and reliable tool for use in clinical routine and clinical research.

Keywords: Croatia; Hypertension, pulmonary; Quality of life; Reproducibility of results; Surveys and questionnaires.

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Figures

Fig. 1
Fig. 1
Median CAMPHOR scale scores by perceived disease severity. All comparisons statistically significant (p<0.01; 2-tailed); QoL = quality of life
Fig. 2
Fig. 2
Median CAMPHOR scale scores by perceived general health. All comparisons statistically significant (p<0.001; 2-tailed); QoL = quality of life
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