Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2019 Sep;181(3):385-392.
doi: 10.1002/ajmg.c.31729. Epub 2019 Aug 8.

Rehabilitation across the lifespan for individuals with arthrogryposis

Lisa V Wagner  1 , J Suzanne Cherry  1 , Bonita J Sawatzky  2 , Alicja Fąfara  3 , Caroline Elfassy  4 , Marie Eriksson  5 , Kathleen Montpetit  4 , Tricia Bucci  1 , Maureen Donohoe  6
Affiliations
Review

Rehabilitation across the lifespan for individuals with arthrogryposis

Lisa V Wagner et al. Am J Med Genet C Semin Med Genet. 2019 Sep.

Abstract

Arthrogryposis multiplex congenita (AMC) can be a perplexing diagnosis that consists of limited range of motion (ROM) and decreased muscle strength in multiple joints. The person with AMC often possesses a certain tenacity and "spunk" that assists them with adjusting and adapting to the realities of daily life. The rehabilitation process assists the individual with AMC in achieving and maintaining the maximal active and passive range of motion and strength in order to participate in activities of daily living (ADL) throughout the developmental stages. The result of this life-long process is greatly impacted by collaboration among the multidisciplinary teams. Ultimately, rehabilitation should focus on three levels of treatment: (a) body structure, (b) activity, and (c) participation. This article describes rehabilitation across the lifespan-focusing on the therapeutic needs in the infant, toddler, school age and teenage/adult years-while also highlighting opportunities for improvement.

Keywords: activities of daily living; arthrogryposis multiplex congenita; orthotics; range of motion; rehabilitation.

PubMed Disclaimer

References

REFERENCES

    1. Abdel-Ghani, H., Mahmoud, M., Shaheen, A., & Abdel-Wahed, M. (2017). Treatment of congenital clasped thumb in arthrogryposis. The Journal of Hand Surgery, European Volume, 42, 794-798. https://doi.org/10.1177/1753193417712863
    1. Alexander, R., Boehme, R., & Cupps, B. (1993). Normal development of functional motor skills: The first year of life. (n.p.). Published by Communication Skill Builders/Therapy Skill Builders: Hammill Institute on Disabilities.
    1. Ayadi, K., Trigui, M., Abid, A., Cheniour, A., Zribi, M., & Keskes, H. (2015). Arthrogryposis: Clinical manifestations and management. Archives de Pédiatrie, 22, 830-839. https://doi.org/10.1016/j.arcped.2015.05.014
    1. Azbell, K., & Dannemiller, L. (2015). A case report of an infant with arthrogryposis. Pediatric Physical Therapy, 27, 293-301. https://doi.org/10.1097/PEP.0000000000000148
    1. Babik, I., Kokkoni, E., Cunha, A. B., Galloway, J. C., Rahman, T., & Lobo, M. A. (2016). Feasibility and effectiveness of a novel exoskeleton for an infant with arm movement impairments. Pediatric Physical Therapy, 28, 338-346. https://doi.org/10.1097/PEP.0000000000000271

MeSH terms

LinkOut - more resources