Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
- PMID: 31413452
- PMCID: PMC6659530
- DOI: 10.4103/IJPC.IJPC_199_18
Availability of Informal Caregivers for Palliative Care Patients with Cancer: Is there a Difference between Higher- and Lower-Income Settings
Abstract
Objective: Family caregivers are the default caring personnel for terminal cancer patients. The characteristics, demographics, distribution, psychological burden, and socioeconomic standards differ between high- and low-income countries. We aimed to assess those factors and their direct reflection on both the patient and the caregiver.
Patients and methods: This is a comparative cross-sectional study for terminal cancer patients in the palliative care unit between the United Kingdom (UK) as a high-income community and Egypt as a low-income community. We assessed the different characteristics, demographics, living place, the degree of relevance, and the availability of caregivers.
Results: We have recruited 216 patients from the UK and 117 patients from Egypt. Informal caregivers were available in 74.5% and 92.3% for these patients with a mean age of 71.5 (standard deviation [SD] 16) years and 50.9 (SD 15.18) years, respectively. There has been a statistically significant difference between the two countries' caregivers in being married, family, and living in the same household (P < 0.0001).
Conclusion: Low-income countries are more common to have an informal caregiver who is a family member of different degree of relevance. Caregivers in low-income settings tend to be younger, of the female gender, married, and living in the same household than in high-income ones.
Keywords: Cancer; caregivers; developing countries; income; palliative care; socioeconomic.
Conflict of interest statement
There are no conflicts of interest.
Figures
References
-
- Farmer P, Frenk J, Knaul FM, Shulman LN, Alleyne G, Armstrong L, et al. Expansion of cancer care and control in countries of low and middle income: A call to action. Lancet. 2010;376:1186–93. - PubMed
-
- Ammari AB, Hendriksen C, Rydahl-Hansen S. Recruitment and reasons for non-participation in a family-coping-orientated palliative home care trial (FamCope) J Psychosoc Oncol. 2015;33:655–74. - PubMed
-
- Leow M, Chan S, Chan M. A pilot randomized, controlled trial of the effectiveness of a psychoeducational intervention on family caregivers of patients with advanced cancer. Oncol Nurs Forum. 2015;42:E63–72. - PubMed
-
- Kinoshita H, Maeda I, Morita T, Miyashita M, Yamagishi A, Shirahige Y, et al. Place of death and the differences in patient quality of death and dying and caregiver burden. J Clin Oncol. 2015;33:357–63. - PubMed
LinkOut - more resources
Full Text Sources