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. 2020 May/Jun;35(3):E299-E309.
doi: 10.1097/HTR.0000000000000525.

The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission

Natalie Kreitzer  1 , Tamilyn Bakas, Brad Kurowski, Christopher J Lindsell, Simona Ferioli, Brandon Foreman, Laura B Ngwenya, Stephanie Thomas, Sara Keegan, Opeolu Adeoye
Affiliations

The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission

Natalie Kreitzer et al. J Head Trauma Rehabil. 2020 May/Jun.

Abstract

Objectives: Survivors of moderate and severe traumatic brain injury (TBI) require substantial care, much of which is ultimately provided by friends and family. We sought to describe the unmet needs of informal caregivers.

Design: Qualitative, semistructured interviews with informal caregivers of moderate and severe TBI survivors were conducted 72 hours, 1 month, 3 months, and 6 months after injury.

Setting: Intensive care unit of a level 1 trauma center.

Participants: Informal caregivers were friends or family who planned to provide care for the patient. Patients were 18 years or older with a moderate to severe TBI, and not expected to imminently die of their injuries.

Measurements and main results: Eighteen patient-caregiver dyads were enrolled. Fifty-three interviews with caregivers were completed and analyzed over the course of 6 months. Three themes were identified in the qualitative analysis: caregiver burden, caregiver health-related quality of life, and caregiver needs for information and support.

Conclusions: This study provides new information about the experience of informal caregivers during the 6 months after their friend or family member survived a moderate to severe TBI. Interventions to promote caregiving may be a substantial opportunity to improve patient-centered outcomes following TBI.

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Conflict of interest statement

The authors declare no conflicts of interest.

Figures

Figure 1.
Figure 1.
Participant (both caregiver and survivor) flow through the study. CG indicates caregiver; CNR, could not reach.
Figure 2.
Figure 2.
Proportion of codes within each time at each time point in the study.
See this image and copyright information in PMC

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