Reflections on involving people living with dementia in research in the Australian context

Theresa Flavin^{1

2}, Craig Sinclair³

Affiliations

¹ Dementia Australia Consumer Network, Sydney, New South Wales, Australia.
² HammondCare, Sydney, New South Wales, Australia.
³ NHMRC Cognitive Decline Partnership Centre, University of Sydney, Sydney, New South Wales, Australia.

Review

Theresa Flavin et al. Australas J Ageing. 2019 Sep.

. 2019 Sep:38 Suppl 2:6-8.

doi: 10.1111/ajag.12596.

Theresa Flavin^{1

2}, Craig Sinclair³

¹ Dementia Australia Consumer Network, Sydney, New South Wales, Australia.
² HammondCare, Sydney, New South Wales, Australia.
³ NHMRC Cognitive Decline Partnership Centre, University of Sydney, Sydney, New South Wales, Australia.

No abstract available

References

1. National Health and Medical Research Council. Statement on Consumer and Community Involvement in Health and Medical Research. Canberra: The Council; 2016.
1. Gove D, Diaz-Ponce A, Georges J et al. Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging & Mental Health 2018;22:723-729.
1. INVOLVE. Briefing Notes for Researchers: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: INVOLVE; 2012.
1. Cognitive Decline Partnership Centre. Supported Decision-Making in Dementia Project Page. Sydney: The Centre; 2016. https://cdpc.sydney.edu.au/research/planning-decision-making-and-risk/su.... Accessed 18 June 2018.
1. Dewing J. Participatory research: A method for process consent with persons who have dementia. Dementia 2007;6:11-25.