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. 2018 Summer;45(2):58-64.

An Analysis of Cancer Registry Cost Data: Methodology and Results

An Analysis of Cancer Registry Cost Data: Methodology and Results

Maggie Cole Beebe et al. J Registry Manag. 2018 Summer.

Abstract

The Centers for Disease Control and Prevention initiated an economic analysis of the National Program of Cancer Registries (NPCR) in 2005 to estimate the true economic costs of operating a cancer registry, identify costs associated with registry activities, and evaluate the factors that may affect the efficiency of registry operations. We developed a Web-based NPCR cost assessment tool (NPCR-CAT) to collect activity-based cost data from all 48 NPCR registries. We collected data on registry funding, actual expenditures, and factors that may affect the efficiency of operating a central cancer registry. Key lessons learned during data collection and analysis include the importance of working closely with registry staff and balancing the need for standardized data elements with an understanding of individual registry characteristics. Our findings and lessons can be adapted to develop costing tools for other surveillance systems and cancer control programs, both domestically and internationally.

Keywords: activity-based costing; cancer registry; cost data collection.

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Figures

Figure 1.
Figure 1.. Data Collection, Cleaning, and Analysis Process
NPCR-CAT, National Program of Cancer Registries cost assessment tool.
Figure 2.
Figure 2.. Expenditure by Budget Category: Three Rounds of National Program of Cancer Registries (NPCR) Registry Cost Data (3-Year Average)
Source: Three rounds of NPCR registry cost data (fiscal years 2009, 2010, and 2011) for 40 cancer registries funded by the Centers for Disease Control and Prevention (CDC)’s NPCR only. Analysis excludes 7 cancer registries that receive funding from both the CDC and the National Cancer Institute and the Pacific Regional Central Cancer Registry.

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