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. 2019 Oct:33 Suppl 6:7-9.
doi: 10.1111/jdv.15828.

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

S Ribero  1 , P Dapavo  1 , C Casalegno  2 ; HS Awareness Working Group
Collaborators, Affiliations

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

S Ribero et al. J Eur Acad Dermatol Venereol. 2019 Oct.

Abstract

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients' life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy.

Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease.

Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients' association.

Results: Results confirm that a better communication has a strong impact on the disease awareness.

Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

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References

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    1. Calao M, Wilson JL, Spelman L et al. Hidradenitis suppurativa (HS) prevalence, demographics and management pathways in Australia: a population-based cross-sectional study. PLoS ONE 2018; 13(7): e0200683.
    1. Saunte DM, Boer J, Stratigos A et al. Diagnostic delay in hidradenitis suppurativa is a global problem. Br J Dermatol 2015; 173: 1546-1549.
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