This site needs JavaScript to work properly. Please enable it to take advantage of the complete set of features!

Skip to main page content

Add to Collections

Your saved search

Name of saved search:

Search terms:

Test search terms

Would you like email updates of new search results?

Yes
No

Email: (change)

Frequency:

Which day?

Which day?

Report format:

Send at most:

Send even when there aren't any new results

Optional text in email:

Your RSS Feed

. 2020 Apr;13(2):251-254.

doi: 10.1007/s40271-019-00390-x.

Involving People with Learning Disabilities in Guideline Development

Justine Karpusheff¹, Charlotte Haynes², Fiona Glen², Gillian Leng²

Affiliations

Affiliations

¹ National Institute for Health and Care Excellence, Level 1A, City Tower, Piccadilly Plaza, Manchester, M1 4BD, UK. Justine.Karpusheff@nice.org.uk.
² National Institute for Health and Care Excellence, Level 1A, City Tower, Piccadilly Plaza, Manchester, M1 4BD, UK.

PMID: 31573060
DOI: 10.1007/s40271-019-00390-x

Involving People with Learning Disabilities in Guideline Development

Justine Karpusheff et al. Patient. 2020 Apr.

. 2020 Apr;13(2):251-254.

doi: 10.1007/s40271-019-00390-x.

Authors

Justine Karpusheff¹, Charlotte Haynes², Fiona Glen², Gillian Leng²

Affiliations

¹ National Institute for Health and Care Excellence, Level 1A, City Tower, Piccadilly Plaza, Manchester, M1 4BD, UK. Justine.Karpusheff@nice.org.uk.
² National Institute for Health and Care Excellence, Level 1A, City Tower, Piccadilly Plaza, Manchester, M1 4BD, UK.

PMID: 31573060
DOI: 10.1007/s40271-019-00390-x

No abstract available

PubMed Disclaimer

Similar articles

A quantum shift in home care service delivery.
Dawes J. Dawes J. Br J Community Nurs. 2008 Jan;13(1):5. doi: 10.12968/bjcn.2008.13.1.27976. Br J Community Nurs. 2008. PMID: 18399364 No abstract available.
All kinds of voices.
Cumming S. Cumming S. Nurs Stand. 2010 Dec 15-2011 Jan 4;25(15-17):64. doi: 10.7748/ns2010.12.25.15.64.p4408. Nurs Stand. 2010. PMID: 21309435 No abstract available.
Core principles on self-care increase patient responsibility.
Hairon N. Hairon N. Nurs Times. 2008 May 13-19;104(19):19-20. Nurs Times. 2008. PMID: 18505152 No abstract available.
Involving patients in staff hand hygiene.
Pearson L, Duncanson V. Pearson L, et al. Nurs Times. 2006 Jun 13-19;102(24):46-7. Nurs Times. 2006. PMID: 16827050 Review.
Choice and decision-making.
Warner L, Mariathasan J, Lawton-Smith S, Samele C. Warner L, et al. Ment Health Today. 2006 Jul-Aug:27-30. Ment Health Today. 2006. PMID: 16894925 Review. No abstract available.

See all similar articles

Cited by

Broadening the diversity of consumers engaged in guidelines: a scoping review.
Synnot A, Hill S, Jauré A, Merner B, Hill K, Bates P, Liacos A, Turner T. Synnot A, et al. BMJ Open. 2022 Jun 16;12(6):e058326. doi: 10.1136/bmjopen-2021-058326. BMJ Open. 2022. PMID: 35710237 Free PMC article.
Meaningful Engagement: Exploring Principles and Actions to Build Client and Caregiver Engagement Within a Community-Based Dual Diagnosis Service.
Almas A, Lysaght R, Farrell S, Heffernan L. Almas A, et al. J Appl Res Intellect Disabil. 2025 Mar;38(2):e70033. doi: 10.1111/jar.70033. J Appl Res Intellect Disabil. 2025. PMID: 40113450 Free PMC article.
'We are the engine': a focus group study on clinical practice guideline development with European patient advocates for rare congenital malformations and/or intellectual disability.
Klein Haneveld MJ, de Mortier CA, Hugon A, Cornel MC, Gaasterland CMW, van Eeghen AM. Klein Haneveld MJ, et al. Orphanet J Rare Dis. 2025 Apr 10;20(1):169. doi: 10.1186/s13023-025-03673-9. Orphanet J Rare Dis. 2025. PMID: 40205602 Free PMC article.

References

1. J Intellect Dev Disabil. 2011 Mar;36(1):27-38 - PubMed
1. J Intellect Disabil Res. 1998 Oct;42 ( Pt 5):418-28 - PubMed
1. PLoS Med. 2015 Oct 27;12(10):e1001895 - PubMed
1. Patient. 2017 Jun;10(3):277-282 - PubMed
1. Med Decis Making. 2011 Nov-Dec;31(6):E45-74 - PubMed

Publication types

Actions

MeSH terms

Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions

LinkOut - more resources

Full Text Sources
- Springer
Medical
- MedlinePlus Health Information