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. 2020 Jan:128:109701.
doi: 10.1016/j.ijporl.2019.109701. Epub 2019 Oct 5.

Quality of life of children with hearing loss in special and mainstream education: A longitudinal study

Tirza F K van der Straaten  1 , Carolien Rieffe  2 , Wim Soede  1 , Anouk P Netten  1 , Evelien Dirks  3 , Anne Marie Oudesluys-Murphy  4 , Friedo W Dekker  5 , Stefan Böhringer  6 , Johan H M Frijns  7 ; DECIBEL Collaborative study group
Affiliations

Quality of life of children with hearing loss in special and mainstream education: A longitudinal study

Tirza F K van der Straaten et al. Int J Pediatr Otorhinolaryngol. 2020 Jan.

Abstract

Objectives: To compare the quality of life (QoL) of children with hearing loss (HL) and children with normal hearing (NH) and to examine how the QoL of children with HL changes over time, considering language skills, type of hearing device, degree of HL, and type of education.

Methods and materials: This longitudinal study included 62 children with HL and their parents. Developmental outcome data were collected at two time points, when the mean ages of the children were 4 and 11 years. The Pediatric Quality of Life (PedsQL™) questionnaire, which includes assessments of Physical, Emotional, Social, and School functioning, was completed by parents at both time points and by the children with HL at the second time point. Receptive and expressive language skills at 4 years were assessed by the Reynell Developmental Language Scale. Results were compared with a Dutch normative sample.

Results: The QoL of children with HL was similar to that of children with NH at both time points on two of the four QoL scales, Emotional and Physical functioning. On the other two scales, Social and School functioning, children with HL who attended special education and children who switched to mainstream education showed lower scores than children with HL who were consistently in mainstream education and lower scores than children with NH. The School QoL of children with HL decreased over time, as did the School QoL of children with NH. Social QoL of children with cochlear implants decreased over time, but this was not the case in children with hearing aids. Language skills and the degree of HL did not clinically improve the QoL over time of preschool children with HL.

Conclusions: The QoL of children with HL in mainstream education and the Physical and Emotional QoL of all children with HL were satisfactory. It is essential to develop specific guidance regarding school activities for children with HL in special education and for children with HL who switch to mainstream education in order to increase their social QoL.

Keywords: Children; Cochlear implants; Hearing aids; Hearing loss; Language; Longitudinal; Mainstream education; Quality of life; Special education.

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