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. 2020 Mar 15;34(4):579-588.
doi: 10.1097/QAD.0000000000002411.

Timing of and factors associated with HIV disclosure among perinatally infected children in rural Zambia

Catherine G Sutcliffe  1 , Carolyn S Drogt  1 , Janneke H van Dijk  2 , Francis Hamangaba  3 , Mathias Muleka  3 , Bornface Munsanje  3 , Jeridy Munsanje  3 , Philip E Thuma  1   3 , William J Moss  1
Affiliations

Timing of and factors associated with HIV disclosure among perinatally infected children in rural Zambia

Catherine G Sutcliffe et al. AIDS. .

Abstract

Objective: This study was conducted to understand the process of disclosure among HIV-infected children receiving care in rural Zambia.

Design: Cross-sectional and longitudinal analyses were conducted within an ongoing clinical cohort study of HIV-infected children receiving care in Macha, Zambia from 2007 to 2016.

Methods: Children receiving HIV care were enrolled into the cohort study and assessed every 3 months. At each study visit, disclosure status was ascertained through questionnaire. Disclosure was categorized as none (child did not know they were chronically ill), partial (child knew they were chronically ill but not of their HIV infection status), or full (child knew they had HIV infection). Barriers to disclosure, and the timing of and factors associated with disclosure, were evaluated among children 5-15 years of age.

Results: At study entry, the prevalence of full disclosure increased with age, from 2.1 to 76.2% among children 5-6 and 13-15 years of age, respectively. Reasons provided by caregivers for not disclosing the child's status included they felt the child was too young, they were afraid to, or they did not know how to tell the child. During follow-up, the median age at full disclosure was 9.0 years. Among children with full disclosure, 89.5% first had partial disclosure at a median age of 7.4 years. Factors associated with disclosure included being female, sharing responsibility for taking their own medication, and low weight-for-age z-score.

Conclusion: Given the complexity of the disclosure process and potential for health benefits, interventions and protocols are needed to support caregivers through the disclosure process.

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References

    1. WHO. WHO HIV Update, July 2018. Available at: http://www.who.int/hiv/data/en/. [Accessed 9 August 2018]
    1. United Nations Children's Fund. For every child, end AIDS - seventh stocktaking report, 2016. New York: UNICEF; 2016.
    1. WHO. Consolidated guidelines on the use of antiretroviral drugs for treating and preventing HIV infection. Recommendations for a public health approach. Second Edition 2016. Geneva, Switzerland: World Health Organization; 2016.
    1. Odiachi A. The impact of disclosure on health and related outcomes in human immunodeficiency virus-infected children: a literature review. Front Public Health 2017; 5:231.
    1. Vreeman RC, Gramelspacher AM, Gisore PO, Scanlon ML, Nyandiko WM. Disclosure of HIV status to children in resource-limited settings: a systematic review. J Int AIDS Soc 2013; 16:18466.

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