Family members' perceptions of a Singing Medicine project in a children's hospital

Abstract

Aim: The aim of this study was to explore family members' perceptions of a Singing Medicine project undertaken by children with long-term conditions in one children's hospital.

Method: A qualitative approach was used involving semi-structured interviews with the family members of children aged 3-14 years who had long-term conditions and were being cared for at one children's hospital in England. Interviews were digitally recorded, anonymised and stored in a password-protected space. Data were analysed using thematic analysis.

Findings: Analysis identified five themes: people in purple shirts; music and emotions; being part of a 'hospital family'; distraction therapy; and lasting effects and life after illness and death. The negative effect for children of being separated from their homes and families during long-term hospital stays was evident, but positive effects, such as developing new relationships, were also identified. Participating in the Singing Medicine project provided children with opportunities to express themselves. The concept of belonging to a hospital family emerged from the study, which could potentially reduce stressors and enhance children's well-being and capacity to cope with long-term illness.

Conclusion: The findings showed that participation in 'arts-in-health' initiatives such as the Singing Medicine project was associated with benefits for children with long-term conditions and their families, such as a reduction in negative emotions and enhanced well-being through distraction and the sharing of positive experiences. Ensuring that children who spend prolonged periods of time in hospital have opportunities to play and express themselves is a priority for healthcare services.

Keywords: child health; end of life care; families; interviews; medicines; music therapy; parents; qualitative research; research; research methods.