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Review
. 2020 Jan;29(1):e13192.
doi: 10.1111/ecc.13192. Epub 2019 Nov 24.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis

Julie Armoogum  1 , Diana Harcourt  1 , Claire Foster  2 , Alison Llewellyn  1   3 , Candida S McCabe  1   3   4
Affiliations
Review

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis

Julie Armoogum et al. Eur J Cancer Care (Engl). 2020 Jan.

Abstract

Objective: This qualitative evidence synthesis aimed to identify, review and synthesise qualitative research describing the experience of persistent pain in adult cancer survivors.

Methods: A systematic literature search was conducted between December 2007 and June 2019. Data synthesis followed Thomas and Harden's (2008) method of thematic synthesis.

Results: Four studies were identified, together incorporating findings from 52 female breast cancer survivors. Six themes were generated as follows: (a) interwoven relationship between experience of cancer and persistent pain, (b) lack of preparedness and support for persistent pain, (c) physical impact of persistent pain, (d) employing coping strategies, (e) emotional experience of persistent pain and (f) conceptualisation of persistent pain.

Conclusions: Persistent pain is intrinsically interwoven with women's experiences of cancer. Persistent pain was unexpected, and women did not feel supported. Women need more information about persistent pain after cancer treatment and support with self-management of pain. Ways to best support cancer survivors with persistent pain need exploration and a review of currently available services is required. More research is needed to understand the experiences of men and other cancer groups.

Keywords: cancer; cancer survivor; chronic pain; living with and beyond cancer; persistent pain.

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References

REFERENCES

    1. Armes, J., Crowe, M., Colbourne, L., Morgan, H., Murrells, T., Oakley, C., … Richardson, A. (2009). Patients’ supportive care needs beyond the end of cancer treatment: A prospective, longitudinal survey. Journal of Clinical Oncology, 27(36), 6172-6179. https://doi.org/10.1200/JCO.2009.22.5151
    1. Bennion, A. E., & Molassiotis, A. (2013). Qualitative research into the symptom experiences of adult cancer patients after treatments: A systematic review and meta-synthesis. Supportive Care in Cancer, 21(1), 9-25. https://doi.org/10.1007/s00520-012-1573-x
    1. van den Beuken-van Everdingen Marieke, H. J., Peters Madelon, L., de Rijke Janneke, M., Schouten Harry, C., van Kleef, M., & Patijn, J. (2008). Concerns of former breast cancer patients about disease recurrence: A validation and prevalence study. Psycho-Oncology, 17(11), 1137-1145.
    1. Bjorkman, B., Arner, S., & Hyden, L. (2008) Phantom breast and other syndromes after mastectomy: eight breast cancer patients describe their experiences over time: A 2-year follow-up study. Journal of Pain, 9(11), 1018-1025. https://doi.org/10.1016/j.jpain.2008.06.003
    1. Björkman, B., Arnér, S., & Hydén, L.-C. (2008). Phantom breast and other syndromes after mastectomy: Eight breast cancer patients describe their experiences over time: A 2-year follow-up. The Journal of Pain, 9(11), 1018-1025.