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Review
. 2019 Dec 28:5:939-952.
doi: 10.1016/j.trci.2019.11.005. eCollection 2019.

A roadmap to develop dementia research capacity and capability in Pakistan: A model for low- and middle-income countries

Iracema Leroi  1 , Nasim Chaudhry  2 , Anna Daniel  3 , Ross Dunne  4 , Saima Eman  5 , Nicolas Farina  6 , Sana-E-Zehra Haidry  1 , Nusrat Husain  7 , Hussain Jafri  8 , Salman Karim  9 , Tayyeba Kiran  2 , Murad Khan  10 , Quratulain Khan  11 , Shakil Jehangir Malik  12 , Rakhshi Memon  13 , Mowadat Hussain Rana  14 , Ambily Sathish  15 , Saima Sheikh  16 , Asad Tamizudin  17 , Sehrish Tofique  2 , Zainab Zadeh  18 ; Pakistan Dementia Research Stakeholder Group (PDRSG)
Collaborators, Affiliations
Review

A roadmap to develop dementia research capacity and capability in Pakistan: A model for low- and middle-income countries

Iracema Leroi et al. Alzheimers Dement (N Y). .

Abstract

Objective: To produce a strategic roadmap for supporting the development of dementia research in Pakistan.

Background: While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.

Methods: We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a "research question" priority survey, and consultations with Key Opinion Leaders.

Results: We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.

Conclusion: This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.

Keywords: Alzheimer disease; Capacity and capability building; Dementia; Lower and middle-income country (LMIC); Mental health; Older adult; Pakistan; Research question prioritization; Research roadmap; South Asia.

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