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. 2020 Jan 23;10(1):e034588.
doi: 10.1136/bmjopen-2019-034588.

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

Serena Francesca Flocco  1 , Rosario Caruso  2 , Serena Barello  3 , Tiziana Nania  1 , Silvio Simeone  4 , Federica Dellafiore  1
Affiliations

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

Serena Francesca Flocco et al. BMJ Open. .

Abstract

Objective: This study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood.

Design: Qualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis.

Setting: San Donato Milanese, Italy.

Participants: 12 adult women during pregnancy or early motherhood.

Results: Three main themes emerged from the analysis that were labelled as follows: 'Being a woman with CHD'; 'Being a mother with CHD'; and 'Don't be alone'. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood.

Conclusion: This study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study's results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.

Keywords: cardiology; congenital heart disease; qualitative research.

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Conflict of interest statement

Competing interests: None declared.

Figures

Figure 1
Figure 1
Summar of themes and subthemes. CHD, congenital heart disease.
See this image and copyright information in PMC

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