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. 2020 Apr;43(2):145-154.
doi: 10.1002/nur.22010. Epub 2020 Jan 27.

Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients

Stacee M Lerret  1 , Rosemary White-Traut  2 , Barbara Medoff-Cooper  3 , Pippa Simpson  4 , Riddhiman Adib  5 , Sheikh Iqbal Ahamed  5 , Rachel Schiffman  6
Affiliations

Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients

Stacee M Lerret et al. Res Nurs Health. 2020 Apr.

Abstract

Solid-organ transplantation is the treatment of choice for end-stage organ failure. Parents of pediatric transplant recipients who reported a lack of readiness for discharge had more difficulty coping and managing their child's medically complex care at home. In this paper, we describe the protocol for the pilot study of a mHealth intervention (myFAMI). The myFAMI intervention is based on the Individual and Family Self-Management Theory and focuses on family self-management of pediatric transplant recipients at home. The purpose of the pilot study is to test the feasibility of the myFAMI intervention with family members of pediatric transplant recipients and to test the preliminary efficacy on postdischarge coping through a randomized controlled trial. The sample will include 40 family units, 20 in each arm of the study, from three pediatric transplant centers in the United States. Results from this study may advance nursing science by providing insight for the use of mHealth to facilitate patient/family-nurse communication and family self-management behaviors for family members of pediatric transplant recipients.

Keywords: mHealth; pediatric; self-management; transplant.

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Figures

Figure 1.
Figure 1.
Individual and family self-management theory applied to pediatric transplant. Adapted and retrieved from https://uwm.edu/nursing/about/centers-institutes/self-management/theory.cfm Adapted with permission of the author, holder of the copyright.
Figure 2.
Figure 2.
Study Enrollment Description Note. myFAMI = study intervention
Figure 3.
Figure 3.
Data collection flow chart. Note. myFAMI = study intervention, PedsQL = Pediatric Quality of Life
See this image and copyright information in PMC

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