Citizen Science Models in Health Research: an Australian Commentary
- PMID: 31993110
- PMCID: PMC6975539
- DOI: 10.5210/ojphi.v11i3.10358
Citizen Science Models in Health Research: an Australian Commentary
Abstract
This qualitative review explores how established citizen science models can inform and support meaningful engagement of public in health research in Australia. In particular, with the growth in participatory health research approaches and increasing consumer participation in contributing to this research through digital technologies, there are gaps in our understanding of best practice in health and biomedical citizen science research to address these paradigm shifts. Notable gaps are how we might more clearly define the parameters of such research and which citizen science models might best support digitally-enabled participation falling within these. Further work in this area is expected to lead to how established citizen science methods may help improve the quality of and the translation of public engagement in health research.
Keywords: citizen science; community based participatory research; crowdsourcing; public health.
This is an Open Access article. Authors own copyright of their articles appearing in the Journal of Public Health Informatics. Readers may copy articles without permission of the copyright owner(s), as long as the author and OJPHI are acknowledged in the copy and the copy is used for educational, not-for-profit purposes.
References
-
- National Health and Medical Research Council. 2016. Statement on consumer and community involvement in health and medical research. Canberra [ACT]: NHMRC. [cited 31 October 2019]; Available at: https://www.nhmrc.gov.au/about-us/publications/statement-consumer-and-co...
-
- Australian Health Research Alliance. 2018. Consumer and Community Involvement in Health and Medical Research: An Australia-wide Audit. Available from: https://www.slhd.nsw.gov.au/SydneyHealthPartners/pdf/AHRA_CCI_Final_Repo...
-
- Irwin A. Citizen science: a study of people, expertise and sustainable development. London: Routledge; 1995.
LinkOut - more resources
Full Text Sources