Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2019 Dec 31;11(3):e23.
doi: 10.5210/ojphi.v11i3.10358. eCollection 2019.

Citizen Science Models in Health Research: an Australian Commentary

Affiliations

Citizen Science Models in Health Research: an Australian Commentary

Ann Borda et al. Online J Public Health Inform. .

Abstract

This qualitative review explores how established citizen science models can inform and support meaningful engagement of public in health research in Australia. In particular, with the growth in participatory health research approaches and increasing consumer participation in contributing to this research through digital technologies, there are gaps in our understanding of best practice in health and biomedical citizen science research to address these paradigm shifts. Notable gaps are how we might more clearly define the parameters of such research and which citizen science models might best support digitally-enabled participation falling within these. Further work in this area is expected to lead to how established citizen science methods may help improve the quality of and the translation of public engagement in health research.

Keywords: citizen science; community based participatory research; crowdsourcing; public health.

PubMed Disclaimer

References

    1. Todd AL, Nutbeam D. 2018. Involving consumers in health research: what do consumers say? Public Health Res Pract. 28(2), e2821813. 10.17061/phrp2821813 - DOI - PubMed
    1. Wiggins A, Wilbanks J. 2019. The Rise of Citizen Science in Health and Biomedical Research. Am J Bioeth. 19(8), 3-14. 10.1080/15265161.2019.1619859 - DOI - PubMed
    1. National Health and Medical Research Council. 2016. Statement on consumer and community involvement in health and medical research. Canberra [ACT]: NHMRC. [cited 31 October 2019]; Available at: https://www.nhmrc.gov.au/about-us/publications/statement-consumer-and-co...
    1. Australian Health Research Alliance. 2018. Consumer and Community Involvement in Health and Medical Research: An Australia-wide Audit. Available from: https://www.slhd.nsw.gov.au/SydneyHealthPartners/pdf/AHRA_CCI_Final_Repo...
    1. Irwin A. Citizen science: a study of people, expertise and sustainable development. London: Routledge; 1995.

LinkOut - more resources