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. 2020 Sep 1;45(8):946-956.
doi: 10.1093/jpepsy/jsz103.

Barriers and Facilitators to Involvement in Children's Diabetes Management Among Minority Parents

Ashley M Butler  1 , Marisa E Hilliard  1 , Courtney Titus  1 , Evadne Rodriguez  1 , Iman Al-Gadi  1 , Yasmin Cole-Lewis  1 , Deborah Thompson  1
Affiliations

Barriers and Facilitators to Involvement in Children's Diabetes Management Among Minority Parents

Ashley M Butler et al. J Pediatr Psychol. .

Abstract

Objective: This study aimed to describe parents' perceptions of the factors that facilitate or are barriers to their involvement in children's type 1 diabetes (T1D) management among African American and Latino parents.

Methods: African American and Latino parents (N = 28) of 5- to 9-year-old children with T1D completed audio-recorded, semi-structured interviews that were transcribed and analyzed using thematic analysis. Themes were identified that aligned with the theoretically-derived Capability-Opportunity-Motivation-Behavior (COM-B) framework.

Results: Parents described Capability-based facilitators of parent involvement, including positive stress management, religious/spiritual coping, organizational/planning skills, and diabetes knowledge. Capability-based barriers included child and parent distress. Interpersonal relationships, degree of flexibility in work environments, and access to diabetes technologies were both Opportunity-based facilitators and barriers; and Opportunity-based barriers consisted of food insecurity/low financial resources. Parents' desire for their child to have a "normal" life was described as both a Motivation-based facilitator and barrier.

Conclusions: African American and Latino families described helpful and unhelpful factors that spanned all aspects of the COM-B model. Reinforcing or targeting families' unique psychological, interpersonal, and environmental strengths and challenges in multilevel interventions has potential to maximize parental involvement in children's diabetes management.

Keywords: diabetes management; parent involvement; race/ethnicity; type 1 diabetes.

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Figures

Figure 1.
Figure 1.
Capability–Opportunity–Motivation–Behavior (COM-B) model. Note. Adapted from Michie, Atkins, and West (2014).
See this image and copyright information in PMC

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