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. 2019 Dec 20;31(1):1-12.
doi: 10.1080/11287462.2019.1703504. eCollection 2020.

Community engagement and ethical global health research

Bipin Adhikari  1   2   3 , Christopher Pell  4   5 , Phaik Yeong Cheah  1   2   6
Affiliations

Community engagement and ethical global health research

Bipin Adhikari et al. Glob Bioeth. .

Abstract

Community engagement is increasingly recognized as a critical element of medical research, recommended by ethicists, required by research funders and advocated in ethics guidelines. The benefits of community engagement are often stressed in instrumental terms, particularly with regard to promoting recruitment and retention in studies. Less emphasis has been placed on the value of community engagement with regard to ethical good practice, with goals often implied rather than clearly articulated. This article outlines explicitly how community engagement can contribute to ethical global health research by complementing existing established requirements such as informed consent and independent ethics review. The overarching and interlinked areas are (1) respecting individuals, communities and stakeholders; (2) building trust and social relationships; (3) determining appropriate benefits; minimizing risks, burdens and exploitation; (4) supporting the consent process; (5) understanding vulnerabilities and researcher obligations; (6) gaining permissions, approvals and building legitimacy and (7) achieving recruitment and retention targets.

Keywords: Community engagement; ethics; global health; research ethics.

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Conflict of interest statement

No potential conflict of interest was reported by the authors.

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