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Review

Data Donation: How to Resist the iLeviathan

In: The Ethics of Medical Data Donation [Internet]. Cham (CH): Springer; 2019. Chapter 2.
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Review

Data Donation: How to Resist the iLeviathan

Barbara Prainsack.
Free Books & Documents

Excerpt

Large corporations are attracting criticism for their quasi-monopolist role in the digital data domain. It has been argued that they are no longer regular market participants but have become de facto market regulators against whom public and civil society actors are powerless even when faced with stark ethical misconduct. Companies such as Google, Amazon, Facebook, and Apple (GAFA) have become a new Leviathan: a monster for which people give up freedoms in exchange for other goods that they consider essential. Data donation is a strategy that could, if certain conditions are met, help tackle the overarching power of multinational enterprises. I will propose that data donation, understood as a specific type of transaction, has three distinctive characteristics: relationality, indirect reciprocity and multiplicity. I suggest ways in which ethical and regulatory frameworks for data donation should consider these characteristics to ensure that data donations respond to the institutional and power relationships that digital data use is embedded in, that data donations contribute to the public good, and that they and protect the personal needs and interests of people involved in it.

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References

    1. Andrejevic, M. 2014. Big data, big questions: The big data divide. International Journal of Communication 8: 1673–1689.
    1. Anonymous. 2017. The world’s most valuable resource is no longer oil, but data. The Economist (6 May). Available at: https://www.economist.com/news/leaders/21721656-data-economy-demands-new.... Accessed 24 June 2018.
    1. Bergquist, M., and J. Ljungberg. 2001. The power of gifts: Organizing social relationships in open source communities. Information Systems Journal 11 (4): 305–320.
    1. Birkinbine, B.J. 2018. Commons praxis: Towards a critical political economy of the digital commons. tripleC 16 (1): 290–305.
    1. Brunton, F., and H. Nissenbaum. 2015. Obfuscation: A user’s guide for privacy and protest. Cambridge, MA: MIT Press.

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