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Review

The Ethics of Uncertainty for Data Subjects

Philip J. Nickel  1
Jenny Krutzinna  1 , Luciano Floridi  2
, editors.
In: The Ethics of Medical Data Donation [Internet]. Cham (CH): Springer; 2019. Chapter 4.
.
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Review

The Ethics of Uncertainty for Data Subjects

Philip J. Nickel.
Free Books & Documents

Excerpt

Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.

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References

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    1. Barry, C., and P. Tomlin. 2016. Moral uncertainty and permissibility: Evaluating option sets. Canadian Journal of Philosophy 46 (6): 898–923.
    1. Boenink, M. 2003. Gezond vertrouwen. Over de rol van vertrouwen in het bevolkingsonderzoek naar borstkanker. Krisis 1: 53–74.

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