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. 2020 Jan-Dec:35:1533317519895638.
doi: 10.1177/1533317519895638.

Primary Progressive Aphasia Education and Support Groups: A Clinical Evaluation

Cathleen Taylor-Rubin  1   2   3 , Lisa Azizi  4 , Karen Croot  2   3   5 , Lyndsey Nickels  2   3
Affiliations

Primary Progressive Aphasia Education and Support Groups: A Clinical Evaluation

Cathleen Taylor-Rubin et al. Am J Alzheimers Dis Other Demen. 2020 Jan-Dec.

Abstract

Objectives: To evaluate the benefits of a primary progressive aphasia (PPA) education and support session for people with PPA (pwPPA) and their caregivers.

Method: Thirty-eight individuals (20 pwPPA, 18 caregivers) were invited to participate in the study. Twenty-five individuals (12 pwPPA, 13 caregivers) completed questionnaires before and after an education and support group session provided by a speech pathologist and a clinical psychologist. Seven individuals (2 pwPPA, 5 caregivers) participated in follow-up interviews.

Results: After one attendance, caregivers reported significant improvement in knowledge of PPA, strategies to manage worry and low mood, and opportunities to meet peers. Themes at interview were reduced feelings of isolation, increased feelings of support, increased knowledge of coping strategies, and improved understanding of PPA. Caregivers who had attended previous sessions reported increased feelings of well-being and support.

Implications: Primary progressive aphasia education and support group sessions in the postdiagnostic period constitute a valuable component of comprehensive care for PPA.

Keywords: communication; dementia; education; group intervention; primary progressive aphasia; support.

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Conflict of interest statement

The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Pre- and postintervention raw scores for people with primary progressive aphasia who attended 1 session only.
See this image and copyright information in PMC

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