Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Feb;7(1):34-41.
doi: 10.1177/2374373518812078. Epub 2018 Nov 21.

A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis

Chungyi Chiu  1 , Malachy Bishop  2 , Bradley McDaniels  2 , Byung-Jin Kim  2 , Lebogang Tiro  2
Affiliations

A Population-Based Investigation of Health-Care Needs and Preferences in American Adults With Multiple Sclerosis

Chungyi Chiu et al. J Patient Exp. 2020 Feb.

Abstract

Background: Comprehensive and effective multiple sclerosis (MS) health care requires understanding of patients' needs, preferences, and priorities.

Objective: To evaluate priorities of patients with MS for their MS care.

Methods: Participants included 3003 Americans with MS recruited through the National MS Society and the North American Research Committee on Multiple Sclerosis patient registry. Participants completed a comprehensive questionnaire on aspects of their health-care experiences.

Results: Participants identified the top 3 health-care priorities as (1) the affordability of MS health care, (2) ensuring that non-MS health-care providers have more education about MS and how it can interact with other conditions, and (3) access to an MS center or specialized MS clinic with MS health-care professionals together in one place. Participants receiving care in an MS center rated the quality and their satisfaction with care higher than those receiving care in other settings. Although having the opportunity to evaluate their health-care quality was important to the participants, only 36.4% had been provided the opportunity in the past year.

Conclusions: This study identifies health-care priorities and concerns for Americans with MS.

Keywords: health-care access; health-care delivery; multiple sclerosis; national survey.

PubMed Disclaimer

Conflict of interest statement

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Similar articles

See all similar articles

Cited by

References

    1. Institute of Medicine (IOM). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press; 2001. - PubMed
    1. National Institute for Clinical Excellence. Multiple Sclerosis: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care London, UK: Royal College of Physicians of London; 2004. - PubMed
    1. Institute of Medicine. Multiple Sclerosis: Current Status and Strategies for the Future. Washington: National Academy Press; 2001. - PubMed
    1. Lerman CE, Brody DS, Caputo GC, Smith DG, Lazaro CG, Wolfson HG. Patients’ perceived involvement in care scale. J General Intern Med. 1990;5:29–33. doi:10.1007/bf02602306. - PubMed
    1. Kaplan SH, Gandek B, Greenfield S, Rogers W, Ware JE. Patient and visit characteristics related to physicians? Participatory decision-making style. Med Care. 1995;33:1176–87. doi:10.1097/00005650-199512000-00002. - PubMed

LinkOut - more resources