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. 2020 Mar 10;22(3):e16728.
doi: 10.2196/16728.

Understanding Patient Anxieties in the Social Media Era: Qualitative Analysis and Natural Language Processing of an Online Male Infertility Community

Vadim Osadchiy  1   2 , Jesse Nelson Mills  1 , Sriram Venkata Eleswarapu  1   2
Affiliations

Understanding Patient Anxieties in the Social Media Era: Qualitative Analysis and Natural Language Processing of an Online Male Infertility Community

Vadim Osadchiy et al. J Med Internet Res. .

Abstract

Background: Couples struggling with infertility are increasingly turning to the internet for infertility-related content and to connect with others. Most of the published data on infertility and the internet only address the experiences of women, with limited studies focusing exclusively on internet discussions on male factor infertility.

Objective: The aim of this study was to understand the concerns and experiences of discussants on an online male infertility community and to provide insight into their perceptions of interactions with health care professionals.

Methods: Using the large-scale data analytics tool BigQuery, we extracted all posts in the r/MaleInfertility community (877 members) of the social media website and discussion board Reddit from November 2017 to October 2018. We performed a qualitative thematic analysis and quantitative semantic analysis using Language Inquiry and Word Count 2015 of the extracted posts to identify dominant themes and subthemes of discussions. Descriptive statistics and semantic analytic Z-scores were computed.

Results: From the analysis of 97 posts, notable themes and subthemes emerged: 70 (72%) posts shared personal experiences, including feeling emasculated or isolated or describing a negative (28/97, 29%), positive (13/97, 13%), or neutral (56/97, 58%) experience with a health care professional; 19% (18/97) of the posts posed questions about personal semen analysis results. On the basis of semantic analysis, posts by men had higher authenticity scores (Z=3.44; P<.001), suggesting more honest or personal texts, but lower clout scores (Z=4.57; P<.001), suggesting a more tentative or anxious style of writing, compared with posts by women.

Conclusions: To our knowledge, this study represents the first evaluation of a social media community focused exclusively on male infertility using mixed methodology. These results suggest a role for physicians on social media to engage with patients and connect them to accurate resources, in addition to opportunities to improve in-office patient education.

Keywords: Reddit; discussion board; infertility, male; online social networking; social media.

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Conflict of interest statement

Conflicts of Interest: SVE serves as a consultant for Metuchen Pharmaceuticals. JNM serves as a consultant for Antares Pharma, Boston Scientific Corporation, and Endo Pharmaceuticals. No other disclosures are reported.

References

    1. Fox S, Duggan M. Pew Research Center. 2013. [2019-05-16]. Health Online 2013 https://www.pewinternet.org/2013/01/15/health-online-2013/
    1. Victorian Assisted Reproductive Treatment Authority. 2018. [2019-06-23]. Assisted reproductive technology – IVF and ICSI https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/Assis....
    1. Wiseman E. The Guardian. 2016. [2019-06-23]. We need to talk about egg freezing https://www.theguardian.com/society/2016/feb/07/life-on-hold-with-frozen....
    1. Kahlor L, Mackert M. Perceptions of infertility information and support sources among female patients who access the internet. Fertil Steril. 2009 Jan;91(1):83–90. doi: 10.1016/j.fertnstert.2007.11.005. - DOI - PubMed
    1. Hinton L, Kurinczuk JJ, Ziebland S. Infertility; isolation and the internet: a qualitative interview study. Patient Educ Couns. 2010 Dec;81(3):436–41. doi: 10.1016/j.pec.2010.09.023. - DOI - PubMed

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