Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Mar-Apr;33(2):322-338.
doi: 10.3122/jabfm.2020.02.190173.

Prognostic Indices for Advance Care Planning in Primary Care: A Scoping Review

Affiliations

Prognostic Indices for Advance Care Planning in Primary Care: A Scoping Review

Peter Kim et al. J Am Board Fam Med. 2020 Mar-Apr.

Abstract

Background: Patient identification is an important step for advance care planning (ACP) discussions.

Objectives: We conducted a scoping review to identify prognostic indices potentially useful for initiating ACP.

Methods: We included studies that developed and/or validated a multivariable prognostic index for all-cause mortality between 6 months and 5 years in community-dwelling adults. PubMed was searched in October 2018 for articles meeting our search criteria. If a systematic review was identified from the search, we checked for additional eligible articles in its references. We abstracted data on population studied, discrimination, calibration, where to find the index, and variables included. Each index was further assessed for clinical usability.

Results: We identified 18 articles with a total of 17 unique prognostic indices after screening 9154 titles. The majority of indices (88%) had c-statistics greater than or equal to 0.70. Only 1 index was externally validated. Ten indices, 8 developed in the United States and 2 in the United Kingdom, were considered clinically usable.

Conclusion: Of the 17 unique prognostic indices, 10 may be useful for implementation in the primary care setting to identify patients who may benefit from ACP discussions. An index classified as "clinically usable" may not be easy to use because of a large number of variables that are not routinely collected and the need to program the index into the electronic medical record.

Keywords: Advance Care Planning; Electronic Health Records; Independent Living; Primary Health Care; Prognosis.

PubMed Disclaimer

Conflict of interest statement

Conflict of interests: None.

Figures

Figure 1.
Figure 1.
Final Search Query as displayed on PubMed.
Figure 2.
Figure 2.
Flow diagram of study selection process to identify potentially useful prognostic indices in the primary care setting to help initiate advance care planning, adapted from the PRISMA statement.

References

    1. Jimenez G, Tan WS, Virk AK, Low CK, Car J, Ho AHY. Overview of systematic reviews of advance care planning: summary of evidence and global lessons. J Pain Symptom Manage . 2018;56(3):436–459. - PubMed
    1. United States Government Accountability Office. Advance Care Planning: Selected States’ Efforts to Educate and Address Access Challenges. 2019. Accessed March 6, 2019.
    1. Rietjens JAC, Sudore RL, Connolly M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol . 2017;18(9):e543–e551. - PubMed
    1. Sudore RL, Lum HD, You JJ, et al. Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manage. 2017;53(5):821–832.e821. - PMC - PubMed
    1. Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–1025. - PubMed

Publication types