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. 2021 Feb;20(2):717-733.
doi: 10.1177/1471301220910637. Epub 2020 Mar 18.

Embarking on a memory assessment voices of older persons living with memory impairment

Marie Tyrrell  1 , Dorota Religa  2 , Bjöörn Fossum  3 , Ragnhild Hedman  4 , Kirsti Skovdahl  5 , Pernilla Hillerås  6
Affiliations

Embarking on a memory assessment voices of older persons living with memory impairment

Marie Tyrrell et al. Dementia (London). 2021 Feb.

Abstract

Aim: To describe older persons who had commenced a memory assessment, experiences of living with memory impairment and related symptoms.

Background: Persons with subjective memory impairment are two times more likely to develop dementia over the years than their peers. Older persons seldom seek help from primary health care clinics solely for subjective memory impairment. Of those who seek help, it can take up to 35 months from the person experiencing initial symptoms to referral to a memory clinic. Further research is needed regarding how older persons live with memory impairment with related symptoms before they receive a memory diagnosis.

Method: A qualitative study with 23 participants who had commenced a memory assessment in primary care. Semi-structured interviews were held. During the interviews, the Neuropsychiatric Inventory was completed and discussed with the participants. Interview data were analysed using Interpretive Description.

Results: The results are presented under four themes: Conflicting views about the situation, Unveiling the presence of neuropsychiatric symptoms, Compensating with external and internal strategies to recall and Worrying about self and future. Persons with memory impairment were encouraged by family members or others to seek a memory assessment. Few persons were self-referred as memory impairment was often seen as a part of aging. Polarised viewpoints existed within the families regarding the impact of memory impairment on daily life. The presence of neuropsychiatric symptoms appeared unexplored in the participants seeking a memory assessment. In this study, the majority of participants experienced neuropsychiatric symptoms at the time of contact for a memory assessment.

Conclusions: Memory problems experienced were often viewed by the person as being part of an aging process. The presence of neuropsychiatric symptoms was not acknowledged as being connected to memory impairment. Contextualising 'memory impairment' as a part of a 'cognitive process' may help the person in identifying the presence of neuropsychiatric symptoms.

Keywords: experiences; interviews; memory impairment; neuropsychiatric symptoms; primary care.

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Conflict of interest statement

Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5 (5th ed.).
    1. Beard L. R., Neary T. M. (2013). Making sense of nonsense: Experiences of mild cognitive impairment. Sociology of Health & Illness, 35(1), 130–146. - PubMed
    1. Begum A., Morgan C., Chiu C. C., Tylee A., Stewart R. (2012). Subjective memory impairment in older adults: Aetiology, salience and help seeking. International Journal of Geriatric Psychiatry, 27(6), 612–620. - PubMed
    1. Birt L., Poland F., Charlesworth G., Leung P., Higgs P. (2019). Relational experiences of people seeking help and assessment for subjective cognitive concern and memory loss. Aging & Mental Health, 27, 1–9. - PubMed
    1. Borsje P., Lucassen P. L. B. J., Bor H., Wetzels R. B., Pot A. M., Koopmans R. T. C. M. (2019). The course of neuropsychiatric symptoms in patients with dementia in primary care. Family Practice, 36(4), 437–444. - PubMed