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Review
. 2020 May;26(3):401-408.
doi: 10.1111/hae.13967. Epub 2020 Apr 3.

Why stay? Resilience in haemophilia physicians in the 1980s

Mallika Sekhar  1   2 , Sushrut Jadhav  3
Affiliations
Review

Why stay? Resilience in haemophilia physicians in the 1980s

Mallika Sekhar et al. Haemophilia. 2020 May.

Abstract

Aims: The occurrence of AIDS in 1980s posed difficult problems for haemophilia clinicians worldwide. The impact of these events is substantial, and the events continue to be subject to judicial proceedings and publications. The stance of haemophilia physicians, particularly their professional resilience, is of importance and remains unexamined.

Methods: Deploying oral histories informed by literature review of scientific publications and past inquiry reports, this qualitative study addresses how physicians continued to work in haemophilia during those years and attributes that contributed to their resilience.

Results and conclusions: Experience and role in laboratory aspects were of value in handling and communicating uncertainty. Collegiality, peer support and scholarship were important in sustaining their roles, in clinical decision-making and re-instating confidence in the therapeutic relationship during the toughest years of their practice.

Keywords: AIDS; collegiality; decision-making; haemophilia; physician; resilience.

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References

REFERENCES

    1. Centers for Disease Control and Prevention. Pneumocystis carinii pneumonia among persons with hemophilia A. Morbidity Mortality Weekly Report. 1982;31(27):365-367.
    1. Darby SC, Ewart DW, Giangrande PLF, et al. Mortality before and after HIV infection in the complete UK population of haemophiliacs. Nature. 1995;377(7):79-82.
    1. Mannuccci PM. AIDS, hepatitis and haemophilia in the 1980s: memoirs from an insider. J Thromb Haemost. 2003;1:2065-2069.
    1. Evatt BL. The tragic history of AIDS in the hemophilia population, 1982-1984. J Thromb Haemost. 2006;4(11):2295-2301.
    1. Keshavjee S, Weiser S, Kleinman A. Medicine betrayed: hemophilia patients and HIV in the US. Soc Sci Med. 2001;53(8):1081-1094.

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