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. 2020 Apr 1;3(4):e203599.
doi: 10.1001/jamanetworkopen.2020.3599.

Evaluation of Hospice Enrollment and Family and Unpaid Caregivers' Experiences With Health Care Workers in the Care of Older Adults During the Last Month of Life

Jennifer L Wolff  1 , Vicki A Freedman  2 , Katherine A Ornstein  3 , John F Mulcahy  1 , Judith D Kasper  1
Affiliations

Evaluation of Hospice Enrollment and Family and Unpaid Caregivers' Experiences With Health Care Workers in the Care of Older Adults During the Last Month of Life

Jennifer L Wolff et al. JAMA Netw Open. .

Abstract

This survey study assesses end-of-life caregivers’ experiences with health care workers during older adults’ last month of life.

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Conflict of interest statement

Conflict of Interest Disclosures: Dr Wolff reported receiving grants from the National Institute on Aging, the John A. Hartford Foundation, and the Commonwealth Fund outside the submitted work. Dr Freedman reported grants from National Institute on Aging during the conduct of the study. Dr Kasper reported grants from National Institute on Aging during the conduct of the study. No other disclosures were reported.

Figures

Figure.
Figure.. End-of-Life and Other Caregivers’ Experiences When Interacting With Older Adults’ Health Care Workers
Estimates were weighted. Sample included family and other unpaid caregivers providing self-care or mobility help to an older adult in the last month of life (end-of-life caregivers) and those providing help to an older adult in the last month (other caregivers). Sample was limited to the two-thirds of end-of-life caregivers (1.6 million of 2.5 million [64.0%] weighted) and nearly half of other caregivers (4.3 million of 9.0 million [48.5%] weighted) who reported that they spoke with or emailed older adults’ health care workers in the past year. The unweighted proportion of end-of-life and other family and unpaid caregivers reporting their experiences of being listened to was 194 of 287 and 572 of 1084, respectively; of being asked about understanding, 194 and 571, respectively; and of being asked about needing help managing older adults’ treatments, 193 and 565, respectively.
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References

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